General organisations
Accessible Property Register (APR)
APR are accessible property specialists. They provide a register of accessible and adapted residential property for sale and rent, including retirement properties, social housing and accessible holiday accommodation.
Tel: 07749 119385
Email:conradh@accessible-property.org.uk
www.accessible-property.org.uk
Bayer Schering Pharma: MS Life
Their mission is ‘Science for a better life – Medical progress for the benefit of the patient’. The company engages in research on new drugs which, as innovative therapies, they hope will make an essential contribution toward improving people’s quality of life.
Tel: 01635 563000
Email:bsp-communications@bayerhealthcare.com
www.mslife.co.uk
The Bladder and Bowel Foundation (B&BF)
The Bladder and Bowel Foundation is the UK charity for people with bladder and bowel disorders. B&BF provide information and support for all types of bladder and bowel related problems for patients, their families, carers and healthcare professionals.
General Enquiries: 01536 533255 Counsellor Helpline: 0870 770 3246
Nurse helpline: 0845 345 0165 Email:info@bladderandbowelfoundation.org
www.bladderandbowelfoundation.org
Carers UK
Carers UK is the voice of Carers. They are an organisation of carers fighting to ensure that the true value of carers’ contribution to society is recognised and that carers get the practical, financial and emotional support they need.
Tel: 020 7378 4999
Carers’ Line: 0808 808 7777
Email: info@carersuk.org
www.carersuk.org
Care Co-ordination Network UK (CCNUK)
CCNUK is a networking organisation promoting and supporting care co-ordination or key working for disabled children and their families in England, Northern Ireland, Scotland and Wales. Their mission is to work in partnership with disabled children, their families and professionals, to ensure that all families across the UK have access to high quality care co-ordination or key worker services. www.ccnuk.org.uk
England office
Tel: 01904 567303
Email: info@ccnuk.org.uk
Scotland office
Tel: 0131 243 2634
Email: scotland@ccnuk.org.uk
Wales office
Tel: 01978 821 324
Email: wales@ccnuk.org.uk
Carers Week
Carers Week campaign for greater recognition and support for carers, and inform those who are unaware, of the services and benefits they are entitled to.
Tel: 0845 241 2582
Email: mail@carersweek.org
www.carersweek.org
Contact a Family
Contact a Family provides support, advice and information for families with disabled children, no matter what their condition or disability. Their vision is that all families with disabled children are empowered to live the lives they choose to live, and achieve their full potential, for themselves, for the communities they live in and for society. They work to remove the barriers imposed by society which prevent families with disabled children achieving their full potential.
Tel: 020 7608 8700
Helpline: 0808 808 3555
Email: info@cafamily.org.uk
www.cafamily.org.uk
Crossroads Caring for Carers
Crossroads promotes, offers, supports and delivers high quality service for carers and people with care needs. They are a national charity, operating across England and Wales. They have Crossroads schemes that provide a range of services designed to provide sensitive and understanding support to carers of all ages and those they care for. They also work to make links with other organisations and the government in order to strengthen support for carers.
Tel: 0845 450 0350
www.crossroads.org.uk
The Commission for Social Care Inspection (CSCI)
Set up by Government to promote improvements in social care and stamp out bad practice, but acting as an independent body, CSCI regulate, inspect and review all adult social care services in the public, private and voluntary sectors in England. They report back to the Government and publish a report to Parliament on the state of social care annually.
Helpline: 0845 015 0120
Helpline’s Newcastle number: 0191 233 3323
Email: enquiries@csci.gsi.gov.uk
www.csci.org.uk
The Dana Alliance for Brain Initiatives
745 Fifth Ave., Suite 900
New York, NY 10151
00 1 (212) 223 4040
Email: dabiinfo@dana.org
www.dana.org/danaalliances
The Dana Alliance for Brain Initiatives is a New York-based non-profit organisation of more than 270 leading neuroscientists committed to advancing public awareness about the progress and promise of brain research and to disseminating information on the brain in an understandable and accessible fashion. The Dana Alliance does not fund research or make grants. They are supported entirely by the Dana Foundation, a private philanthropic foundation with principal interests in brain science, immunology, and arts education.
DIAL UK, Serving the Disability Advice Network
DIAL UK is a national organisation for a network of approximately 120 local Disability Information and Advice Line services (DIALs) run by and for disabled people. DIAL information and advice services are based throughout the UK and provide information and advice to disabled people and others on all aspects of living with a disability. All DIAL services are currently working to meet strict new quality standards.
Tel: 01302 310 123
Email: enquiries@dialuk.org.uk
www.dialuk.org.uk
Direct Enquiries
Direct Enquiries, The Nationwide Access Register, was developed in partnership with RADAR and the Employers’ Forum on Disability to provide people with information about disabled access in buildings and premises all across the UK. Direct Enquiries works with all the organisations registered, who provide Direct Enquiries with comprehensive information about their disabled access and facilities.
Tel: 01344 360101
Email: customerservices@directenquiries.com
www.directenquiries.com
Disabled Living Foundation (DLF)
DLF is a national charity that provides free, impartial advice about all types of daily living equipment and mobility products for disabled adults and children, older people, their carers and families. The DLF aim to improve the quality of life of people living with a disability by finding independent living solutions.
Tel: 020 7289 6111
Helpline: 0845 130 9177
Email: info@dlf.org.uk
www.dlf.org.uk
Disability Now
Online magazine www.disabilitynow.org.uk
The Equality and Human Rights Commission
The Equality and Human Rights Commission is a non-departmental public body (NDPB) established under the Equality Act 2006 – accountable for its public funds, but independent of government. This commission brings together the work of the three previous equality commissions – the Equal Opportunities Commission, the Commission for Racial Equality, and the Disability Rights Commission – and also takes on responsibility for the other aspects of equality. Opening on 1 October 2007, the new commission works towards eliminating discrimination, reducing inequality, protecting human rights and building good relations, to ensure that everyone has a fair chance to participate in society.
Tel: 020 3117 0235
England Main Helpline: 0845 604 6610
Wales Main Helpline: 0845 604 8810
Scotland Main Helpline: 0845 604 5510
Email: info@equalityhumanrights.com
www.equalityhumanrights.com
The Disabled Workers Cooperative
The Disabled Workers Co-operative is a registered charity that helps disabled people to help themselves. Our aim is twofold – to raise the independence of disabled people (for those that want it) by enabling them to take an active role in the economy and achieve a greater sense of self-worth and also to raise awareness of the contribution that disabled people can make to society. They provide an online database and eJobs Portal aimed at jobseekers with disabilities.
Genetic Interest Group
The Genetic Interest Group (GIG) is a national alliance of patient organisations with a membership of over 130 charities that support children, families and individuals affected by genetic disorders.
Tel: 020 7704 3141
Email: mail@gig.org.uk
www.gig.org.uk
Health6.com
Health6.com is an human edited directory for health and business related sites.
Healthcare Commission
The Healthcare Commission is the independent watchdog for healthcare in England. They assess and report on the quality and safety of services provided by the NHS and the independent healthcare sector, and work to improve services for patients and the public.
Tel: 020 7448 9200
Helpline: 0845 601 3012
Email: feedback@healthcarecommission.org.uk
www.healthcarecommission.org.uk
Mobility Trust
With an initial purpose of developing new mobility aids, Mobility Trust now work to fund them. They concentrate on providing powered wheelchairs and scooters for severely disabled children and adults who cannot obtain them through statutory sources or purchase such equipment themselves. Mobility Trust feel it is essential that all disabled people be given the chance to attain their own potential for independence through mobility. They give direct help to disabled people, whether effected by a well know or obscure condition.
Tel: 0118 984 2588
Email: mobility@mobilitytrust.org.uk
www.mobilitytrust.org.uk
National Voices
National Voices is the new umbrella organisation established by and for the voluntary sector. It brings together all national voluntary organisations representing users of health and social care to give them a stronger voice in policy-making.
Tel: 020 3176 0738
Email: info@nationalvoices.org.uk
www.nationalvoices.org.uk
Oyster Healthcare Communications Online
Oyster is a specialist medical publisher. Their quarterly magazines and news services in key medical specialties provide support to primary and secondary care teams.
Tel: 01273 601996
Email: mail@oysterhc.co.uk
www.oysterhc.co.uk
Patient UK
Initially starting out as a directory of UK websites which provided information of health, disease and related issues, Patient UK now aim to be a reliable and comprehensive source of health and disease information, mainly aimed at the UK general public, but of interest to all.
RADAR (Royal Association for Disability and Rehabilitation)
RADAR is the UK’s largest disability campaigning network, with over 900 individual and organisational members. Their vision is a just and equal society whose strength is human difference. Their mission is to enable individuals, networks and policy-makers to do things differently.
Tel: 020 7250 3222
Email: radar@radar.org.uk
www.radar.org.uk
The Regional Driving Assessment Centres (RDAC)
The RDAC specialises in providing assessments for people who want to learn to drive or return to driving with a disability, or following a debilitating illness. They operate in Birmingham, Oxford, Cannock & Hull, aiming to help people maintain independence through mobility.
Registered Charity No. 1122214
Tel: 0845 337 1540
Email: info@rdac.co.uk
www.rdac.co.uk
Spinal Cord Tumour Forum
For people in the UK who have had or whose lives have been affected by benign spinal cord tumours.
Email: sctforum@yahoo.co.uk
www.spinalcordtumour.org.uk
Talking Newspapers Association UK
The Talking Newspapers Association UK provide national and local newspapers and magazines on audio tape, computer disk, e-mail, internet download and CD-ROM for visually impaired and disabled people who find reading a strain.
Tel: 01435 866102
Email: info@tnauk.org.uk
www.tnauk.org.uk
If you know of any organisations that you think should be displayed on this page, please email your suggestion to admin@neural.org.uk