National organisations

ADDER (Action for Dystonia, Diagnosis, Education and Research)

21 Liddell Terrace,
Bensham, Gateshead
Tyne & Wear
NE8 1YN
Tel: 0191 477 7700
Email: info@actionfordystonia.co.uk
www.actionfordystonia.co.uk

Advances the education of the public in relation to the sickness and distress caused, promotes the treatment of people with dystonia and offers support and welfare to patients, their carers and families. Promotes awareness and encourages research amongst the medical profession of dystonia.

Alzheimer’s Society

Devon House
58 St Katharine’s Way
London E1W 1JX
Tel: 020 7423 3500
Email: enquiries@alzheimers.org.uk
www.alzheimers.org.uk

Alzheimer’s Society is a membership organisation, which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland. Many of their 25,000 members have personal experience of dementia, as carers, health professionals or people with dementia themselves, and their experiences help to inform the Society’s work.

The Ann Conroy Trust

33 Southam Road
Dunchurch
Rugby
Warwickshire
CV22 6NL
Tel. 01788 537676
Email: enquiries@theannconroytrust.org.uk
www.theannconroytrust.org.uk

Provides support for suffers and carers of syringomyelia and related conditions. Works to inform health professionals, families and the general public about the condition. Also supports research in to syringomyela and related conditions.

Association for Spina Bifida and Hydrocephalus (ASBAH)

42 Park Road
Peterborough
PE1 2UQ
Tel. 01733 555988
Email: info@asbah.org
www.asbah.org

Provides services to individuals with spina bifida and/or hydrocephalus, their families and carers; including support, advocacy and advice. Provides information on all aspects of the disabilities. Also supports research into medical, scientific and social aspects. Works to improve statutory services for those affected by these disabilities.

Association of British Neurologists

Ormond House
27 Boswell Street
London WC1N 3JZ
Tel: 020 7405 4060
www.abn.org.uk

The ABN aims to encourage nationwide availability of excellent and equitable neurological services. It supports neurologists and neurological trainees in their clinical practice, research and academic activities and fosters communication with patient interest groups.

Ataxia-Telangiectasia Society

IACR-Rothamsted
Harpenden
Herts
AL5 2JQ
Tel. 01582 760733
Fax. 01582 760162
Email: atcharity@aol.com
www.atsociety.org.uk

Aims to alleviate the distress of A-T through funding research, supporting families and raising awareness.

Ataxia UK

Lincoln House
Kennington Park
1-3 Brixton Road
London
SW9 6DE
Tel: 020 7582 1444
Email: enquiries@ataxia.org.uk
www.ataxia.org.uk

Conducts fundraising to support medical research into causes and potential therapies. Provides information, advice and support to people affected by Ataxia.

Brain and Spinal Injury Charity (BASIC)

The Neurocare Centre
554 Eccles New Road
Salford
M5 5AP
Tel. 0161 707 6441
Fax. 0161 787 4558
Email: enquiries@basiccharity.org.uk
www.basiccharity.org.uk

Provides information and support for people affected by neurological conditions. Runs a number of self help groups around the UK. BASIC also promotes research into neurological conditions.

Brain and Spine Foundation

7 Winchester House
Kennington Park
Cranmer Road
London SW9 6EJ
Tel. 020 7793 5900
Fax. 020 7793 5939
Brain and Spine Helpline. 0808 808 1000
Email: info@brainandspine.org.uk
www.brainandspine.org.uk

Aims to improve the quality of life for people with neurological disorders and to reduce neurological disability through research, education, and patient and carer support and information programmes.

Brain Tumour UK

Tower House, Latimer Park
Chesham HP5 1TU
Helpline: 0845 4500 386
Tel: 01494 549180
enquiries@braintumouruk.org.uk
www.braintumouruk.org.uk

Brain Tumour UK provides practical and emotional support to brain tumour patients and their families and has a national network of grassroots supporters. They provide a focal point for dynamic discussions within the UK brain tumour community.

British Polio Fellowship

Eagle Office Centre
The Runway
South Ruislip
Middx
HA4 6SE
Tel. 020 8842 1898
Fax. 020 8842 0555
Email: info@britishpolio.org.uk
www.britishpolio.org.uk

Provides a wide range of information and advice about disability in general, polio and post-polio syndrome. Also provides support to people affected by polio.

Cavernoma Alliance UK

2 St Helen’s Road,
Dorchester,
Dorset,
DT1 1SD
Email: info@cavernoma.org.uk
www.cavernoma.org.uk

Cavernoma Alliance UK, formed in February 2005 (as Angioma Alliance UK) and constituted as a charity in July of the same year, is comprised of cavernoma patients from all over the UK.
Cavernoma Alliance UK aims to provide a support group for those with cavernoma through events such as an annual forum in London and a mailing list. It also aims to makes the general public aware of cavernoma.

Child Brain Injury Trust

C/O Radcliffe Infirmary
Woodstock Road
Oxford
OX2 6HE
Tel. 01865 552467
Helpline. 0845 6014939
Email: info@cbituk.org
www.cbituk.org

Support and information for families and professionals who are affected by acquired brain injuries. CBIT is a national charity delivering projects and support through a helpline, parent support groups, books, leaflets and a web site. CBIT operates a small grant programme for children and young people, work in a participative environment and specialise in influencing the way in which serves are deliver.

CMT UK

CMT United Kingdom
98 Broadway
Southbourne
Bournemouth
BH6 4EH
Helpline: 0800 6526316
Office: 01202 432048
Email: info@cmt.org.uk
www.cmt.org.uk

Opening Hours – 9.30am to 3pm, Mon & Fri;, 9am to 12noon, Wed; variable at other times.

CMT work to support those who are affected by Charcot-Marie-Tooth Disease, also known as Hereditary Motor and Sensory Neuropathy or Peroneal Muscular Atrophy. Their aims and objectives are to:

• Offer assistance and support to those with this condition
• Promote and research into the means by which CMT may be prevented and treated and to disseminate the results of such research for the benefit of the public

Cure Parkinson’s Trust

Helen Matthews or Theresa Samworth
The Vestry
1 St Clement’s Court
London
EC4N 7HB
Tel: 020 7929 7656 or 07867 978662
Email: cptinfo@cureparkinsons.org.uk
www.cureparkinsons.org.uk

The Cure Parkinson’s Trust is a patient led charity that funds research which will have an impact on the lives of people with Parkinson’s, with the hope of an eventual cure for the condition.

Developmental Adult Neuro-Diversity Association (DANDA)

46 Westbere Road
London
NW2 3RU
Tel. 0207 435 7891
Email: mary.colley@danda.org.uk
www.danda.org.uk

DANDA is the first national charity in the world specialising exclusively in all types of neurodiversity in adulthood, user-led or non user-led. DANDA helps adults with developmental dyspraxia, dyslexia, Asperger’s syndrome, AD(H)D, dyscalculia and related conditions reach their full potential. DANDA also provides support and raises awareness.

Different Strokes

9 Canon Harnett Court
Wolverton Mill
Milton Keynes
MK12 5NF
Tel. 01908 313 501
Email: info@differentstrokes.co.uk
www.differentstrokes.co.uk

Run by stroke survivors for stroke survivors. Aims, through active self help and mutual support, to help younger stroke survivors to optimise their recovery, take control of their lives and regain as much independence as possible. Organises exercise classes nation-wide.

Dystonia Society

89 Albert Embankment
London
SE1 7TP
Tel. 0845 458 6211
Email: info@dystonia.org.uk
www.dystonia.org.uk

Provides support for people with dystonia, and their families, through the promotion of awareness, the publication of literature and medical research and welfare.

Encephalitis Society

7b Saville Street
Malton
YO17 7LL
Tel 01653 692583
Fax 01653 604369
Email: mail@encephalitis.info
www.encephalitis.info

Supports individuals and families of people affected by encephalitis. Raises awareness amongst professionals about the condition and problems experienced. Promotes research into encephalitis.

Epilepsy Action

New Anstey House
Gate Way Drive
Yeadon
Leeds
LS19 7XY
Helpline number 0808 800 5050
Phone 0113 210 8800
Fax 0113 391 0300
Email: info@epilepsy.org.uk
www.epilepsy.org.uk

Provides advice and information services for people with epilepsy, their families and those who care for them. Also campaigns for improved health and social services.

Epilepsy Bereaved

PO Box 112
Wantage
Oxon OX12 8XT
Tel: 01235 772850
Email (general enquiries): information@epilepsybereaved.org.uk
Email (information and bereavement support): contact@epilepsybereaved.org.uk
www.sudep.org

Epilepsy Bereaved is the leading voluntary organisation in the UK and Internationally on Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy related deaths. They work with leading experts to bring the taboo of SUDEP out of the shadows.

Fibro Action

46 The Nightingales
Newbury
RG14 7UJ
Email: info@fibroaction.org
http://fibroaction.org

Fibro Action work to educate people about Fibromyalgia Syndrome (Fibro), including people with Fibro, their family, friends and carers, healthcare professionals and the public at large, as well as providing support to patients. Their vision is that the needs of people with Fibro are universally recognised and met, with fast and accurate diagnoses and easy access to optimal treatment programs available to all people with Fibro.

Glenside Manor

Warminster Road
South Newton
Salisbury
Wiltshire
SP2 0QD
Tel: 01722 742066
Fax: 01722 744443
Email: care@glensidemanor.co.uk
www.glensidemanor.co.uk

Glenside was established by Denis and Clare Barry in 1982 and originally provided dementia care for the elderly in residential homes on the current location in South Newton, near Salisbury. It has gradually transitioned to specialise in neuro rehabilitation.

In 1998 their first brain injury rehabilitation facility (Newlands) opened and Glenside has since grown to offer a complete range of inpatient and outpatient medical care and rehabilitation services to adults who are living with severe physical, cognitive or behavioural impairments resulting from long-term neurological conditions, including acquired or traumatic brain injury.

Guillain Barré Syndrome Support Group

GBSSG
LCC Offices
Eastgate
Sleaford
NG34 7EB
Phone/Fax: 01529 304615
Helpline (UK) 0800 374803
Helpline (Republic of Ireland) 0044 1529 415278
Email: admin@gbs.org.uk
www.gbs.org.uk
Registered Charity 327314

The GBS Support Group is a registered charity based in the United Kingdom that offers support and information to those affected by Guillain-Barré syndrome, CIDP and other dysimmune neuropathies throughout Britain and Ireland.

Headway – The Brain Injury Association

Bradbury House
190 Batnall Road
Old Basford
Nottingham
NG6 8SF
Phone: 0207 841 0240
Email (general enquiries: enquiries@headway.org.uk
Email (helpline): helpline@headway.org.uk
www.headway.org.uk

Supports people with brain injury, their families and carers and concerned professionals. Has 115 groups throughout the UK, 57 of which run Activity/Rehabilitation Centres called Headway Houses. Campaigns for improved statutory services for people with brain injury.

HemiHelp

6 Market Road
London N7 9PW
Helpline: 0845 123 2372 (Opening hours 10am to 1pm, Monday to Friday, during term time).
Email: info@hemihelp.org.uk
www.hemihelp.org.uk

HemiHelp is a membership organisation offering information and support to children and their families affected by hemiplegia.

Hemiplegia is a neurological condition that weakens one side of the body, and affects one child in a thousand. It is sometimes described as a form of cerebral palsy, and the effects are similar to those of a stroke.

Huntington’s Disease Association

Neurosupport Centre
Norton Street
Liverpool
L3 8LR
Tel. 0151 298 3298
Email: info@hda.org.uk
www.hda.org.uk

Provides care, advice, support and education to both families and professionals caring for people affected by Huntington’s Disease.

Independent Healthcare Advisory Service (IHAS)

Centre Point
103 New Oxford Street
London WC1A IDU
Tel: 020 7379 8598
Email: info@independenthealthcare.org.uk
www.independenthealthcare.org.uk

The Independent Healthcare Advisory Services (IHAS) bring together members and specialists across the health care industry, to share a unique level of knowledge, experience and understanding.

Integrated Neurological Services

82 Hampton Road,
Twickenham,
TW2 5QS
Tel: 020 8755 4000
Fax: 020 8755 4003
Email: manager@ins.org.uk
www.ins.org.uk

Integrated Neurological Services is a Richmond-based charity providing long-term rehabilitation and support for people with neurological conditions. INS is a registered charity set up to encourage independence and self-help particularly for people with Mutliple Sclerosis, Parkinson’s Disease or who have had a Stroke. They enable people to help themselves in the company of others: to recover their sense of social inclusion, to reach their potential and to make the best of their abilities in order to achieve their optimum quality of life.

Joint Epilepsy Council

P.O.Box 186
Leeds
LS20 8WY
Tel. 01943 871 852
Email: sharon.jec@btconnect.com
www.jointepilepsycouncil.org.uk

An umbrella organisation that exists to enable epilepsy organisations to work together for the benefit of people who have epilepsy.

Lincolnshire Post-Polio Network

P O Box 954
Lincoln
LN5 5ER
Tel. 01522 888601

Email: info@lincolnshirepostpolio.org.uk
www.lincolnshirepostpolio.org.uk

The Lincolnshire Post Polio Network is a Post-Polio Information Service run by polio survivors for Medical Professionals and Polio Survivors their families and friends. The extensive Website contains an On-Line Library of 100+ catalogued medical articles and other information. They produce quarterly 20 page newsletters. Email enquiries are welcomed and answered.

Matthew’s Friends

PO Box 191
Oxted
Surrey
RH8 0WL
Tel: 07748800438
Email: enq@matthewsfriends.org
http://site.matthewsfriends.org

Matthew’s Friends provides information, research, training and support for parents and professionals regarding dietary treatment for epilepsy. Their goals is to improve services and lives of adults and children with refractory epilepsy.

The Migraine Trust

2nd Floor
55-56 Russell Square
London
WC1B 4HP
Tel. 020 7436 1336
Email: info@migrainetrust.org
www.migrainetrust.org

Focuses on those who suffer from migraine and other headache conditions. Aims to maximise management and minimise impact of the condition through funding research, education, promotion and support.

Motor Neurone Disease Association

PO Box 246
Northampton
NN1 2PR
Tel: 01604 250505
Fax: 01604 638289

Email: info@mndassociation.org
www.mndassociation.org

Works to ensure that people affected by MND secure the highest standards of care in order to achieve quality of life. Stimulates and funds research into the causes of MND. Provides a helpline, information, equipment loan, financial support, a network of regional care advisers, local branches and volunteer visitors.

Multiple Sclerosis Society

MS National Centre
372 Edgware Road
Cricklewood
London
NW2 6ND
Tel. 020 8438 0700
Fax 020 8438 0701

Email: info@mssociety.org.uk
www.mssociety.org.uk

Provides support and information for people affected by MS through a network of branches (about 370 around UK) and through helpline and publications. Carries out research into MS and policy work and campaigns on MS issues. Also provides respite and holiday homes.

Multiple Sclerosis Trust

Spirella Building
Bridge Road
Letchworth
Herts
SG6 4ET
Tel. 01462 476700
Email: info@mstrust.org.uk
www.mstrust.org.uk

The Multiple Sclerosis Trust is a leading UK charity for people with MS, their families and friends, and for the health and social care professionals who work with them. The MS Trust offers practical, deliverable solutions:

• Information about MS which is positive and constructive
• Education for nurses and other professionals
• Research which is relevant to people who live with MS
• Support for MS specialist nurses

Muscular Dystrophy Campaign

7-11 Prescott Place
London
SW4 6BS
Tel. 0207 720 8055
Fax. 0207 498 9670
Email: info@muscular-dystrophy.org.uk
www.muscular-dystrophy.org

Meets the needs of people with neuromuscular conditions in the UK, their carers and their families. Searches for treatments and cures for over 60 muscle-wasting conditions. Provides support services to families and individuals through branches, a network of care advisors attached to specialist hospitals, a central information office and regular publications.

National Centre for Young People with Epilepsy (NCYPE)

St Piers Lane
Lingfield
Surrey
RH7 6PW
Tel. 01342 832243
Fax 01342 834639
Email: info@ncype.org.uk
www.ncype.org.uk

The National Centre for Young People with Epilepsy is the major provider of specialised care to young people with epilepsy in the UK. The charity works in partnership with Great Ormond Street for Children NHS Trust and The Institute of Child Health. The NCYPE is dedicated to providing an environment where children with epilepsy can live, learn and develop, no matter how severely they are affected by epilepsy.

National ME Centre

DSC
Harold Wood Hospital
Romford
Essex
RM3 0AR
Tel. 01708 378050
Email: nmecent@aol.com
www.nmec.org.uk

Provides consultant led clinics to confirm the diagnosis of ME and offer advice on management (appointments available via GP or consultant referral only). Offers one to one outpatient appointments with trained support workers who give advice in managing the illness. Provides some information about services for people with ME and chronic fatigue syndrome.

The National Society for Epilepsy (NSE)

Chesham Lane
Chalfont St Peter
Bucks SL9 0RJ
Tel: 01494 601 300
Helpline: 01494 601 400
www.epilepsynse.org.uk

The National Society for Epilepsy provide up to date information on all aspects of living with epilepsy, from driving, employment and pregnancy to leisure, travel and medication. Their information is intended to help those affected by epilepsy make informed choices and decisions.

National Tremor Foundation

DSC
Harold Wood Hospital
Romford
Essex
RM3 0AR
Tel: 01708 386399
Fax: 01708 378032
Email: tremorfoundation@aol.com
www.tremor.org.uk

Provides patients and their families with information on essential tremor. Maintains a world-wide referral network of specialists experienced in the clinical care of essential tremor patients. Assists in the formation of local independent support groups for patients

National Voices

National Voices
202 Hatton Square
16 Baldwin Gardens
London
EC1N 7RJ
Tel: 020 3176 0738
Email: info@nationalvoices.org.uk
www.nationalvoices.org.uk

National Voices was formed in September 2008 as an umbrella organisation, and was set up to ensure that the needs and preferences of those affected by government health and social care policy are given full weight in its development and implementation. It brings together a broad and diverse coalition of voluntary sector organisations representing patients, service users and carers, and ensures that their voices are taken into account from the earliest possible stages of policy development by providing an effective channel of communication with policy makers.

Neurosupport

The Neurosupport Centre
Norton Street
Liverpool L3 8LR
Tel. 0151 298 2999
Fax 0151 298 2333
Email: info@neurosupport.org.uk
www.neurosupport.org.uk

This charity provides non-medical information and support to people with a neurological condition and their families, including library facilities, project and office base for neuro charities, programme of conferences and meetings. Facilitates Mersey Neurological Charities Group.

Pain Concern

PO Box 13256,
Haddington,
EH41 4YD
Tel: 01620 822572
Email: info@painconcern.org.uk
www.painconcern.org.uk

Information and support for pain sufferers, those who care for them and about them.

Parkinson’s UK

215 Vauxhall Bridge Road
London
SW1V 1EJ
Tel. 020 7931 8080
info@parkinsons.org.uk
www.parkinsons.org.uk

Provides practical support, information and advice to people with Parkinson’s and their carers. Funds research to investigate the causes of Parkinson’s, to improve the treatments available and to develop new treatment techniques.

Primary-Care Neurology Society (P-CNS)

P-CNS Secretariat
c/o Innervate Ltd
117 Waterloo Road
London SE1 8UL
Tel: 020 7921 0002
Fax: 020 7760 7193
Email: info@p-cns.org.uk
www.p-cns.org.uk

The Primary Care Neurology Society is a network of like minded healthcare professionals, organisations and partnering companies who all share an interest in primary care neurology. The Society’s main aim is to generate greater awareness and interest in neurology among professionals with an interest, or working, in primary care to help improve the quality of healthcare services to people suffering neurological symptoms and defined illnesses/conditions.

The PSP Association

PSP House
167 Watling Street West
Towcester
Northants NN12 6BX
Tel: 01327 322410
Fax: 01327 322412
Email: psp@pspeur.org
www.pspeur.org

Promotes research worldwide into the cause, an effective treatment and eventual cure for Progressive Supranuclear Palsy. Provides information and support to afflicted families across Europe. Raises awareness of the disease, particularly amongst relevant health professionals and amongst the general public at large, mainly in the UK. Fundraises to enable the above to take place.

Ring 20 Chromosome Foundation

One Angel Court
London
EC2R 7HJ
Tel: 020 7710 6920
Email: info@ring20.org
www.ring20.org

The Ring Chromosome 20 Foundation was created to provide information, resources and assistance to families affected by ring chromosome 20 syndrome. Our hope is to share as much information as possible so that doctors and families can better understand the syndrome and its treatment.

Royal Hospital for Neuro-disability

West Hill, Putney
London
SW15 3SW
Tel: 020 8780 4500
Fax: 020 8780 4501
Email: info@rhn.org.uk
www.rhn.org.uk

The Royal Hospital for Neuro-disability (RHN) is a medical charity that offers assessment, treatment and ongoing care to adults aged 18+ who have profound disability as a result of neurological damage or disease and is registered for 260 beds for provision of long stay, short stay, rehabilitation, respite and day care.

The RHN offers a specialist care programme that is tailored to suit the individual needs of each patient and diagnosis; as the patient makes progress, they may be moved from one unit to another. It aims to help clients gain an improved quality of life, and retain independence, choice and dignity.

Each year the RHN supports campaigns to help put issues relating to the brain at the forefront of people’s thinking, and in 2009 worked with the European DANA Alliance for the Brain (EDAB) during Brain Awareness Week to help raise Brain Injury Awareness.

The Sarah Matheson Trust

Box 200
St Mary’s Hospital
Praed Street
London
W2 1NY
Tel: 020 7886 1520 Monday-Friday (9.30-4.30)
Fax: 020 7886 1540
Email (general enquiries): office@msaweb.co.uk
Email (enquiries): nurses@msaweb.co.uk

This service only offers standard answers by email to commonly asked questions, the nurses encourage individual discussion by telephone for more personalised responses.
www.msaweb.co.uk

The Sarah Matheson Trust was established in 1997 to offer information and support to all people affected by Multiple System Atrophy (MSA). They aim to provide information and support to people living with MSA and their families; raise awareness of the condition and its treatment, especially among healthcare professionals; and promote and sponsor research into MSA, its cause, treatment and ultimately its cure.

Scope

6 Market Road
London
N7 9PW
Tel: 020 7619 7100.
Scope Response (freephone): 0808 800 3333.
Text SCOPE, plus your message to 80039
Email: response@scope.org.uk
www.scope.org.uk

Scope is the disability organisation in England and Wales whose focus is people with cerebral palsy. Their aim is that disabled people achieve equality: a society in which they are as valued and have the same human and civil rights as everyone else.

Shane Project

Edmonton Baptist Church
Monmouth Road, The Green
London N9 OLS
Tel: 020 8884 6330
Email: enquiries@shaneproject.org.uk
www.shaneproject.org.uk

The Shane Project exists to raise awareness, provide support, information, advocacy and empowerment to people with MS, their carers and relatives, particularly in the African Caribbean and minority ethnic communities.

Speakability

1 Royal Street
London
SE1 7LL
Tel. 020 7261 9572
Fax 020 7261 9542
Email: speakability@speakability.org.uk
www.speakability.org.uk

Speakability supports people with aphasia, and those that care for them, through its information service and network of self-help groups. We campaign to increase awareness of aphasia as a long-term condition. We provide training to paid and unpaid carers on communication skills.

The Stroke Association

Stroke House
240 City Road
London
EC1V 2PR
Tel: 020 7566 0300
Helpline: 0303 3033 100
Email: info@stroke.org.uk
www.stroke.org.uk

Aims to help all in England and Wales affected by stroke. Develops and provides services, supports research, disseminates knowledge, provides training and education to improve standards of care.

Sue Ryder Care

114-118 Southampton Row
London
WC1B 5AA
Tel: 020 7400 0440
Fax 020 7400 0411
Email: info@suerydercare.org
www.suerydercare.org

Provides specialist care and support to people with a neurological condition. They aim to be the first choice in their chosen field of activity. “Care that liberates lives.”

Tourettes Action

Southbank House
Black Prince Road
London SE1 7SJ
Tel. 020 7793 2356
Helpline 0845 458 1252
Email: admin@tourettes-action.org.uk
www.tourettes-action.org.uk

Provides free information and support for everyone affected by Tourette Syndrome (TS), promotes research into better treatments and seeks to change society’s view so that all children and adults with TS receive the practical support and social acceptance they need to lead their lives to the full.

Transverse Myelitis Society

Lew Gray, Secretary
35 Avenue Road
Brentford
TW8 9NS
Tel. 020 8568 0350
Email: lewgray@blueyonder.co.uk
www.myelitis.org.uk

Provides information and support for TM sufferers, families and carers.

Trigeminal Neuralgia Association UK

PO Box 234
Oxted
Surrey RH8 8BE
Tel. 01883 370214
Email: help@tna.org.uk
www.tna.org.uk

Provides information, support and encouragement to trigeminal neuralgia patients, their families and friends; raises awareness of the condition among medical professionals and members of the public; promotes research and serves as an information centre for current treatments and details of any advances being made in the treatment of trigeminal neuralgia.

Tuberous Sclerosis Association

PO Box 12979
Barnt Green
Birmingham B45 5AN
Tel/Fax. 0121 445 6970
Email: development-support@tuberous-sclerosis.org
www.tuberous-sclerosis.org

Provides support for individuals affected by tuberous sclerosis and those caring for them; education of professionals, sufferers and the general public. Encourages and sponsors research.

UK Acquired Brain Injury Forum (UKABIF)

Chloë Hayward
UKABIF Executive Director
PO Box 355
Plymouth
PL3 4WD
Tel. 01752 601318
Email: ukabif@btconnect.com
www.ukabif.org.uk

The United Kingdom Acquired Brain Injury Forum is a not-for-profit coalition of organisations and individuals that seek to promote understanding of all aspects of Acquired Brain Injury and provide information and expert input to policy makers and others to promote the interests of brain injured people and their families. The Forum encourages the development of good practice by setting up working parties and conferences to discuss any aspect of ABI and supports the All Party Parliamentary Group on Acquired Brain Injury.