20th January 2009
Inquiry into Access to Special Care
The All-Party Parliamentary Group for Muscular Dystrophy has launched an Inquiry into access to NHS specialist care for people living with rare conditions. The Inquiry will focus on access to specialist multi-disciplinary care; commissioning and funding; workforce planning and the role of care co-ordinators. The APPG investigation follows a number of hard hitting reports published by the Muscular Dystrophy Campaign, which reveal that life expectancy and quality of life is being seriously affected by a ‘postcode lottery’ in service provision. The APPG is calling on interested parties to submit evidence by February 2009. Find out more at www.muscular-dystrophy.org.
At the same time, the All Party Parliamentary Group for Parkinson’s (APPG) has launched an inquiry into access to health and social services for people with Parkinson’s and their carers. Written evidence is to be submitted by 9 February. Find out more at www.parkinsons.org.uk.