29th February 2012
Rare Disease Day 2012
Today is the fifth annual Rare Disease Day; an awareness-raising event co-ordinated by EURORDIS at the international level and National Alliances of Patient Organisations at the national level.
Over 60 countries are participating in Rare Disease Day and to mark the event, EURORDIS have organised a European Symposium in Brussells. Watch the livestream.
A rare disease is one that affects fewer than 5-in-10,000 people, but most have less than 1-in-100,000.
Today, the Department of Health has launched a consultation on first ever UK plan for rare diseases. According to this plan on rare diseases, earlier diagnosis of a rare condition and better coordinated care will help improve the quality of life for people with rare diseases and their families.
Find out more
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