NHS reorganisation is important, but must not be a distraction from recovery
Our Chief Executive, Georgina Carr, looks at the NHS White Paper in greater detail. Earlier this month, the Government set out its proposals for the most substantial NHS legislation in nearly a decade in its white paper ‘Working together to improve health and social care for all’. Like so many policy wonks in the sector, […]
NHS reform blueprint published
Today sees the publication of a government white paper on an NHS reform aimed at improving service integration. The proposals, if implemented, would put Integrated Care Systems (ICSs) on a legal footing. They would also enable NHS England to delegate or transfer the commissioning of certain specialised services to ICSs singly or jointly, or for NHS England to […]
Forwards into 2021.
Since the start of the year we have been discussing our priorities as a team for the Alliance and setting objectives for 2021. At the beginning of January we welcomed back Katharine McIntosh as our policy manager and said farewell to Judy who worked so hard during 2020 to cover for Katharine and much more […]
The UK Rare Diseases Framework – New hope, or same-old, same-old?
A blog post by our Trustee and CEO of Ataxia UK, Sue Millman In general, most neurological services for people with ataxia haven’t fared well during the Covid-19 pandemic, and it’s the same right across neurology. Most face-to-face outpatients’ clinics have been cancelled, or changed to telephone appointments or virtual consultations – with serious consequences […]
New digital tool to encourage people with neurological conditions to share their experiences
Yesterday the Brain and Spine Foundation and the Neurological Alliance launched a new mobile app and website to support people with neurological conditions to more easily share their experiences of care. The app, ‘NeuroLifeNow’ has been designed in response to service disruptions in neurological treatment, care and support exacerbated by Covid-19. The pilot, which launched […]