Blog

January 20, 2021

My priorities as Chair of the Alliance

Our new Chair and Chief Executive of the MS Trust, David Martin, sets out his priorities for the future of the Alliance and care for people affected by neurological conditions. We will be pumping up the volume at the Neuro Alliance in 2021 so that more people across the neurology sector get to have their […]
January 8, 2021

NICE Quality Standard on suspected neurological conditions published

Today the National Institute for Health and Care Excellence (NICE) has published its ‘Suspected neurological conditions: recognition and referral‘ Quality Standard. The Standard is intended to support more effective and timely diagnosis of people with possible neurological conditions, and contain six areas for specific improvement and information about how these may be measured. The Standards […]
December 21, 2020

Parliamentarians hear from people with neurological conditions about how they have been impacted during the pandemic

This month, Parliamentarians from five All Party Parliamentary Groups (APPGs) on different neurological conditions came together to hear about how services for people with neurological conditions have been impacted during COVID-19, with a particular focus on rehabilitation. The session was jointly coordinated by the APPG secretariats, Parkinson’s UK, MS Society, SUDEP Action, MND Association, Epilepsy […]
November 12, 2020

Out of the Shadows: our new report launched today on the need for a better deal for people with rare neurological conditions

Dr Wendy Edwards of PSPA tells us how important our new report, Out of the Shadows, is for shining a light on rare neurological conditions, to improve the care and support people with rare neurological conditions receive along the whole care pathway Following nine months of consultation, the rare neurological conditions report, ‘Out of the Shadows’, has […]
August 13, 2020

“The resilience of Polio survivors seems to shine in the most difficult times”

Responding to COVID-19: voices from our membership We have been asking our memberships to share their experiences of COVID-19. Kripen Dhrona is Operations Director at the British Polio Fellowship, one of our newest members. He shares the Fellowship’s experience of coping with COVID-19, and how they are meeting some of the challenges they have been facing. […]
August 11, 2020

Working together: an example from Hampshire

Responding to COVID-19: voices from our membership COVID-19 has profoundly changed our lives. One possible positive change is changing how we work and collaborate with one another, as we face this virus together. We asked Anne Meader, Chair of the Hampshire Neurological Alliance and Secretary of Carers Together, to share her positive experience during these unprecedented times. Bronze […]