March 12, 2020

Chief Exec Reflects

In our new blog post, below, our Chief Executive Georgina Carr reflects on her first month working at The Neurological Alliance. What a difference a month makes I have been in post for just over six weeks now, and it has been a fantastic whirlwind of listening, learning and very warm welcomes from across the sector. I […]
March 11, 2020

Why I’ve launched a petition for better social care – Nikkita Otu

My name is Nikkita Otu. I was 18 when I was diagnosed with severe epilepsy, but I started having seizures as early as 18 months old. There were years in-between when I didn’t have any seizures, but when they returned, they got worse. Now, I’m 29 years old, and a mum to my son. I […]
January 11, 2020

UK Framework for Rare Diseases published

The UK Framework for Rare Diseases, published on 09 January, outlines the principles behind how people with a rare conditions will be diagnosed, treated and cared for in years to come. It provides the backdrop for how services need to improve for rare disease patients and their families/carers. Unusually for health, the Framework applies across all […]
May 2, 2019

New NICE neurological conditions guideline: a missed opportunity

The National Institute for Health and Care Excellence (NICE) has published a new guideline on suspected neurological conditions: recognition and referral. The Neurological Alliance is disappointed with the result. The guideline is intended to help non-specialist healthcare professionals, such as GPs, working in primary care to identify people who should be referred on for specialist investigation […]