Blog
Alliance Member Epilepsy Action campaigning for change
Alliance member Epilepsy Action shows how they are supporting the Alliance’s goals and placing the experiences of people with living with a neurological condition front and centre as they campaign for change. Daniel Jennings, Senior Policy and Campaigns Officer and Claudia Christie, Media Officer at Epilepsy Action, write: Since Personal Independence Payments (PIP) were introduced […]
Things have changed for the better. Is that the case for your neurological condition?
Sarah Joiner, Vice Chair of the MS Trust and member of The Neurological Alliance #MyNeuroSurvey Steering Group, writes: I was diagnosed with multiple sclerosis in 1981. Back then I received care from a consultant and a small medical team. Hours of waiting all morning, an examination to see how the condition had progressed, and some […]
We have never needed patient advocacy and citizen advocacy more than we need it now
Caroline Clarke, CEO at the Royal Free London NHS Foundation Trust, writes: Thank you for giving me the opportunity to speak at your AGM and to restate what I said then to your members in this blog. I am the CEO at the Royal Free London NHS Foundation Trust, a group of hospitals in North […]
Reasons to be a radiator
Georgina Carr, Chief Executive, outlines her hopes for the new year: Like many of us, I’ve found this year to be incredibly difficult. The impacts of the Covid-19 pandemic seem to be relentless. People, communities and services are incredibly resilient, but have been tested as never before. At our AGM last week, our wonderful speaker, […]
Alliance urges NHS England and NHS Improvement to appoint a national clinical director for neurology
The Neurological Alliance has written an urgent letter – backed by over 30 groups supporting people with neurological conditions – to the NHS England and NHS Improvement Medical Director, Professor Steven Powis, calling for the appointment of a National Clinical Director (NCD) for neurology. The call comes as the NHS in England is undergoing substantial […]