Blog

December 22, 2021

Alliance Member Epilepsy Action campaigning for change

Alliance member Epilepsy Action shows how they are supporting the Alliance’s goals and placing the experiences of people with living with a neurological condition front and centre as they campaign for change. Daniel Jennings, Senior Policy and Campaigns Officer and Claudia Christie, Media Officer at Epilepsy Action, write: Since Personal Independence Payments (PIP) were introduced […]
December 15, 2021

Things have changed for the better. Is that the case for your neurological condition?

Sarah Joiner, Vice Chair of the MS Trust and member of The Neurological Alliance #MyNeuroSurvey Steering Group, writes: I was diagnosed with multiple sclerosis in 1981.   Back then I received care from a consultant and a small medical team.  Hours of waiting all morning, an examination to see how the condition had progressed, and some […]
December 8, 2021

We have never needed patient advocacy and citizen advocacy more than we need it now

Caroline Clarke, CEO at the Royal Free London NHS Foundation Trust, writes: Thank you for giving me the opportunity to speak at your AGM and to restate what I said then to your members in this blog. I am the CEO at the Royal Free London NHS Foundation Trust, a group of hospitals in North […]
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December 2, 2021

Celebrating achievements across the neuro community

As we publish our annual report, we reflect on the Alliance’s activities in the last financial year (July 2020 – June 2021), celebrate achievements from across the neurological community, and look to the future.
November 25, 2021

Reasons to be a radiator

Georgina Carr, Chief Executive, outlines her hopes for the new year: Like many of us, I’ve found this year to be incredibly difficult. The impacts of the Covid-19 pandemic seem to be relentless. People, communities and services are incredibly resilient, but have been tested as never before. At our AGM last week, our wonderful speaker, […]
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November 16, 2021

Alliance urges NHS England and NHS Improvement to appoint a national clinical director for neurology

The Neurological Alliance has written an urgent letter – backed by over 30 groups supporting people with neurological conditions – to the NHS England and NHS Improvement Medical Director, Professor Steven Powis, calling for the appointment of a National Clinical Director (NCD) for neurology. The call comes as the NHS in England is undergoing substantial […]