Neuro Patience: Take Action

The Neurological Alliance’s Neuro Patience report highlights what you told us about your experiences associated with having a neurological condition. It shows that lots of you are having similarly difficult experiences on a range of issues. We’re making the case for action to change this, to improve life for all people with neurological conditions.

 

Write to your MP

One thing you can do to influence the services and supports you receive is to get your MP to engage with the improvements needed. You can do this by writing to them about what is needed to make life better for people with neurological conditions.  We have drafted a template letter for you to use.

 

You can also find out how the experience of people with neurological conditions in your region compares to other areas of the country – and include this in your letter.

 

You can find out who your MP is and their contact details by typing your postcode into parliament’s website.

 

Ideas for your letter

Some of the topics you might like to ask them to take action on include:
• The need for a national plan for neurology for England. Scotland already has one, and it’s time we had one in England to get the ball rolling on all the improvements needed.
• The need for improved mental health treatment for people with neurological conditions, and for neurology to be a priority for any mental wellbeing improvement initiatives for people with physical health conditions.
• The need for the social care crisis to be resolved though better, long term funding solutions from the Government.
• The need for the Government to take action to tackle the barriers to employment faced by people with health conditions and disabilities
• The need for the Government to reform the welfare system so that people with neurological conditions can rely on welfare support when they need it, without unnecessary burden, or fear of having it taken away.

 

Below we’ve provided some hints about tips about how to catch their attention with your letter. We’ve also provided a template letter to help you.

 

Tip 1: Make it personal

MPs want to hear about what matters to you as their constituent and how their help can make a difference so make sure you include some detail about this in your letter. How does your neurological conditions effect you?

Tip 2: Be persistent

MPs are often very busy and they only have a small team to help process their post and emails so sometimes it does take some time to receive a response. Usually they work Mon-Thurs in Westminster and then spend Fridays and the holidays in their constituency. So sometimes you might have to nudge them for a response.
If you’re not happy with an initial result, make sure you follow this up with them.

Tip 3: Explain what you want your MP to do

If you’re not sure how they could help you, just be honest and possibly suggest a meeting with them to talk through in more detail.

Tip 4: Include your postcode

MPs are meant to respond to their constituents. Don’t forget to include your address/postcode so that they know they should be responding to you.

Tip 5: Tell them if you voted for them

MPs like to hear from a range of voices before making a decision.

Tip 6: Be polite, to let the issue shine through

Always make sure to be polite and courteous so that your letter makes an impact because of the issues you’re discussing, maximising your chances of the MP writing back.

 

If you’ve decided to take action, we’d love to hear about it. Please email us at info@neural.org.uk