Patient experience survey

About our patient experience survey 2018–2019

We are currently analysing the data collected in our third biennial patient experience survey.  Our patient experience survey is unique in gathering the views of people with neurological conditions across England about their experience of health and care services across the country. It enables us to understand what’s good, and what’s poor, in people’s experience of local services. As with our previous surveys, we will use the results to campaign for improvements to these services. We plan to publish a report of our findings and recommendations in summer 2019.


New methodology

Our previous two patient experience surveys 2014 and 2016 were run online in 2014 and 2016. For 2018/19 we also added a new clinic-based methodology, to enable us to achieve a more representative sample of people with neurological conditions, and increase our response rate. We’ve worked with a survey company, Quality Health, to develop and undertake this additional survey method.


Another addition is that we are collaborating with the Stroke Association on a stroke version of the survey. Stroke is more of a priority area for the health service than the rest of neurology. So, by collaborating with the stroke community we hope to gain more traction for the whole of neurology.

Our previous patient experience surveys

This is our third patient experience survey. For details our 2014 and 2016 surveys and to read about the findings please see the reports:


» The invisible patients: Revealing the state of neurology services
» Falling short: How has neurology patient experience changed since 2014


For more information about the survey please email