Patient experience survey

About our patient experience survey 2018–2019

We are currently undertaking our third biennial patient experience survey.  Our patient experience survey is unique in gathering the views of people with neurological conditions across England about their experience of health and care services across the country. It enables us to understand what’s good, and what’s poor, in people’s experience of local services. As with our previous surveys, we will use the results to campaign for improvements to these services. We plan to publish a report of our findings and recommendations in summer 2019.

To access the survey, please click here.

The survey is live online from 17 October 2018 to 22 March 2019. It may take around 20 minutes to complete. Survey responses are completely confidential, and information about this is provided at the start of the survey.

New methodology

Our previous two patient experience surveys 2014 and 2016 were run online in 2014 and 2016. For 2018/19 we’re also adding a new clinic-based methodology, to enable us to achieve a more representative sample of people with neurological conditions, and increase our response rate. Clinical staff in hospitals across England will be hand out paper copies or the survey to their neurology outpatients. We are working with a survey company, Quality Health, to develop and undertake this additional survey method.

Another addition is that we are working with the Stroke Association on a stroke version of the survey. Stroke is more of a priority area for the health service than the rest of neurology. So, by working jointly with the stroke community we hope to gain more traction for the whole of neurology.

Please promote the survey

Please help us promote the online survey – we’re stronger together. The more people hear about the survey, the more they are likely to complete it, and the richer our data will be. This will enable us to use the survey results for a strong campaign for improved services for all people with neurological conditions. We will also provide our members with data for their individual condition, for use in your own campaigning work.

We offer a communications toolkit to aid with promotion. Accompanying social media graphics can be downloaded by right-clicking on the images below:

Patient survey social media image


Patient survey social media image


Patient survey social media image


An A4 poster is also available.

Our previous patient experience surveys

This is our third patient experience survey. For details our 2014 and 2016 surveys and to read about the findings please see the reports:

» The invisible patients: Revealing the state of neurology services
» Falling short: How has neurology patient experience changed since 2014

For more information about the survey please email