We are listening. Share your experiences. Older sikh man in conversation with his daughter. Both are smiling.

#MyNeuroSurvey: share your experiences and help improve services

Thank you

A huge thank you to everyone who took part in My Neuro Survey 2024 and everyone who shared it and encouraged others to take part. 

My Neuro Survey 2024 is now closed. Over 9,500 people affected by neurological conditions (we’re still counting your responses), including adults, children and carers, have taken part, sharing your experiences of life with a neurological condition and giving insight into care, treatment and support.

It was wonderful to collaborate with the Neurological Alliances of Scotland and Wales and the Northern Ireland Neurological Charities Alliance, and The Neurological Alliance of Ireland too, making this our biggest My Neuro Survey yet.

As with previous iterations, the results will be used to lobby government and healthcare providers, including NHS bodies, to commission, fund and improve care, support and services for everyone affected by neurological conditions. Your experiences are vital in making the case for change: thank you.

Next steps

We will be publishing a report into the findings in mid-2025, and the results will shape our campaigning for the next two years.

As part of developing the report into the results, we will be looking for specific examples of different aspects of care, people interested in speaking to the media about their experiences and your input into recommendations for Government. Please watch out for news on this in 2025.

Didn’t take part in the survey?

We appreciate your ongoing interest and support for The Neurological Alliance’s work. We understand there are many reasons for not taking part, and that sharing your experiences is a personal decision.

There will be plenty of ways to shape our work, and our recommendations for Government.

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