News
LGBT people affected by neurological conditions report worse mental wellbeing, My Neuro Survey shows
Today we publish new analysis of My Neuro Survey responses that shows that people affected by neurological conditions and who identify as gay, lesbian, bisexual or trans often report worse experiences of care, including poor access to support for their mental wellbeing. Using data gathered through My Neuro Survey, the largest patient experience survey of […]
To the new Prime Minister, on behalf of the one in six
National political leadership to improve services for people affected by neurological conditions has never been more critical. With a new Prime Minister in post, and ministerial changes afoot, the Government has an opportunity to back the one in six people living with a neurological condition in the UK and bring about much needed change. We […]
Our response to the Health and Social Care Committee Inquiry on ICS accountability and autonomy
The Health and Social Care Committee launched an inquiry into how Integrated Care Systems (ICSs) will deliver joined up health and care services to meet the needs of their local populations. The inquiry also considered how ICSs could and should balance increased flexibility over budgets and commissioning with the need for clear accountability. We responded […]
Expanding data and reaching seldom-heard voices: help take NeuroLifeNow to the next level
The Brain and Spine Foundation and The Neurological Alliance have been running the NeuroLifeNow app together for the past year. It’s a platform to support people with neurological conditions to share their stories and gather real-time data around their experience of care, treatment, support and daily living. Neurological Alliance Trustee and Brain and Spine Foundation […]
NHS England and NHS Improvement publish roadmap for delegation of specialised services
NHS England and NHS Improvement (NHSE/I) have set out their plans to delegate responsibility for a range of services to an ‘Integrated Care System’ (ICS) level. This means that many services that are currently planned and commissioned at a national level (i.e. specialised) will now be planned and commissioned at a regional level. The ‘Roadmap […]
NHS England and NHS Improvement to appoint new National Clinical Directors for neuroscience
NHS England and NHS Improvement (NHSE/I) have confirmed they will appoint new National Clinical Directors (NCDs) for neurology, and neurosurgery and spinal surgery. A long time coming The roles are an important step in tackling the significant unwarranted variation in treatment, care and support for the 1 in 6 living with a neurological condition in […]
