Our Members

Browse our directory of member organisations to see who we are working with and find support for you. These organisations aim to inform and advise individuals, carers and other people affected by a neurological condition.

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Full members

Ataxia UK

Ataxia UK supports medical research into causes and potential therapies. They provide information, advice and support to people affected by ataxia.


Autistica is the UK’s leading autism research charity, which works to ensure everyone affected by autism has the chance of a long, happy, healthy life.

Batten Disease Family Association

The Batten Disease Family Association is a national charity which aims to support families, raise awareness and facilitate research into the group of devastating neurodegenerative diseases commonly known as batten disease. They work with children, young people, families and professionals across the UK.

Brain and Spine Foundation

The Brain and Spine Foundation aims to improve the quality of life for people with neurological disorders and to reduce neurological disability through research, education, and patient and carer support and information programmes.

Brain Research UK

There are hundreds of neurological conditions and Brain Research UK funds the best research at centres of excellence throughout the UK to discover the causes, develop new treatments, and improve the lives of those affected. The charity helps to accelerate the progress of brain research by encouraging scientists to share knowledge and by nurturing future talent. Read about why they joined the Alliance here

Brain Tumour Research Logo

Brain Tumour Research

Brain Tumour Research’s vision is to find a cure for brain tumours. Brain Tumour Research is only national charity in the UK that is dedicated to raising funds for continuous and sustainable scientific research into brain tumours and are a leading voice calling for greater support and action for research into what scientists are calling the last battleground against cancer.


British Polio Fellowship

The British Polio Fellowship is a charitable organisation dedicated to supporting and empowering the 120,000 people in the UK living with the late effects of polio and post-polio syndrome (PPS). It provides information, welfare and support to those affected, to enable them to live full, independent and integrated lives and campaigns to raise awareness of PPS.


Cavernoma Alliance UK

Cavernoma Alliance UK is a support group for those with cavernoma. It also aims to makes the general public aware of cavernoma.


CMT work to support those who are affected by Charcot-Marie-Tooth Disease, also known as Hereditary Motor and Sensory Neuropathy or Peroneal Muscular Atrophy. They offer assistance and support to those with this condition. They promote and research into the means by which CMT may be prevented and treated and to disseminate the results of such research for the benefit of the public.

The Daisy Garland

The Daisy Garland exclusively supports children and young adults with drug-resistant epilepsy, and their families.  Our extensive funding of ketogenic dietitians within the NHS has been instrumental in bringing the ketogenic diet to the forefront in the UK, helping improve the lives of thousands of children.  Our first-hand experience of the ketogenic diet and SUDEP gives us a unique understanding of the diverse needs associated with complex epilepsy, and our wide ranging tailored support gives families better options and improves outcomes.  We are committed to advancing awareness and understanding of this condition: our printed resources are free for medical professionals and service providers.

Different Strokes

Run by stroke survivors for stroke survivors, Different Strokes aims, through active self help and mutual support, to help younger stroke survivors to optimise their recovery, take control of their lives and regain as much independence as possible. They also organise exercise classes nation-wide.

Downs Syndrome Research Foundation UK

A charity born out of a parent’s love and a passion for the very best evidence-based interventions. We are the UK’s only Down’s syndrome research charity. Our vision is long, healthy, happy life for people with DS and their families.

Dravet Syndrome UK

Dravet Syndrome UK (DSUK) is an independent charity dedicated to improving the lives of those affected by Dravet Syndrome through support, education and medical research by: supporting families affected by Dravet Syndrome emotionally, practically and financially, raising awareness and understanding of Dravet Syndrome among medical professionals and funding medical research to increase understanding of Dravet Syndrome, improve its management, and work towards better outcomes.

Dystonia UK

“Dystonia UK is the only UK national charity dedicated to helping people living with dystonia, a neurological movement disorder thought to affect around 100,000 people in the UK. They provide support for people with dystonia and their families through the publication of information and updates, influencing national policies and best practice, supporting research and development, and raising awareness of the little-known condition.”


Epilepsy Action

Epilepsy Action provides advice and information services for people with epilepsy, their families and those who care for them. They also campaign for improved health and social services.

Epilepsy Research UK

Epilepsy Research UK supports and promotes basic and clinical scientific research into the causes, treatments and prevention of epilepsy. We are the only national charity in the UK that is exclusively dedicated to funding independent research into this condition. Epilepsy Research UK was formed following the merger of the Epilepsy Research Foundation and the Fund for Epilepsy, in April 2007.

Familial Dysautonomia UK (FDUK)

Familial Dysautonomia UK (FDUK) supports sufferers of FD and their families. Formally known as the Dysautonomia Society of Great Britain (DSGB) the charity strives to raise awareness of the condition in the community. Its aim is also to raise money to fund individual medical needs and requirements, as well as pay for specialised doctors to cone to London to hold clinics to assess the FD sufferers as well as guide UK doctors in the specialised expertise.

FND Action

FND Action is a registered charity in England and Wales, which aims to raise awareness of functional neurological disorder (FND) and Non Epileptic Attack Disorder (NEAD), and provide a support network across the UK for those diagnosed and their families and carers.


FND Hope UK promotes awareness of FND through education and raising public understanding in England and Wales. We are dedicated to supporting those individuals affected with functional symptoms by advancing research into practical applications for the prevention, treatment and recovery of FND. We are uniting patients and their families from the UK with leading researchers and advocates to pioneer a new standard of care for FND throughout the world.

Guillain Barré and Associated Inflammatory Neuropathies (GAIN)

GAIN offers support and information to those affected by Guillain-Barré syndrome, CIDP and other dysimmune neuropathies throughout Britain and Ireland.

Huntington’s Disease Association

A registered national charity, founded in 1971, which exists to help people living with Huntington’s disease to live a better life. The charity improves care and support services for people with Huntington’s disease, educates families and professionals and champions people’s rights.


IIH UK is dedicated to providing sources of information and support to those with Idiopathic Intracranial Hypertension, and all who support them. They promote awareness, facilitate research, and advocate the Charity’s public, social and support activities.

Matthew’s Friends

Matthew’s Friends provide quality information, training, research, recipes and support for patients, families and health care professionals, since 2004. Medical Ketogenic Dietary Therapies are used for the treatment of drug-resistant epilepsy, Glut1 Deficiency Syndrome and PDHD, with further neurological disorders being explored.

Migraine Trust

The Migraine Trust focuses on those who suffer from migraine and other headache conditions. They aim to maximise management and minimise impact of the condition through funding research, education, promotion and support.

Motor Neurone Disease Association

The Motor Neurone Disease Association works to ensure that people affected by motor neurone disease secure the highest standards of care in order to achieve quality of life. They stimulate and fund research into the causes of motor neurone disease. They provide a helpline, information, equipment loan, financial support, a network of regional care advisers, local branch and volunteer visitors.

Multiple Sclerosis National Therapy Centres

The MS National Therapy Centres harness the power of collective action to support member centres in the delivery of services which will improve the quality of life for everyone using those services.

Multiple Sclerosis Society

The Multiple Sclerosis Society provide support and information for people affected by multiple sclerosis through a network of branches and through helpline and publications. They carry out research into multiple sclerosis and policy work and campaigns on multiple sclerosis issues. They also provides respite and holiday homes.

Multiple Sclerosis Trust

The Multiple Sclerosis Trust is a leading UK charity for people with multiple sclerosis, their families and friends, and for the health and social care professionals who work with them. They provide Information about multiple sclerosis; education for nurses and other professionals; carry our research which is relevant to people who live with multiple sclerosis; and they support for multiple sclerosis specialist nurses.

Multiple System Atrophy Trust

The Multiple System Atrophy Trust provides information and support to people living with multiple system atrophy and their families; raises awareness of the condition and its treatment, especially among healthcare professionals; and promotes and sponsors research into multiple system atrophy, its cause, treatment and ultimately its cure.


The Myaware offers support to myasthenics and their families, increasing public and medical awareness and raising funds for research. They act as a contact point putting sufferers and their families in touch with each other so that they do not feel isolated in dealing with this rare disease. They also put members in touch with other appropriate agencies for any specific problems they are facing, for example problems with benefits.

Narcolepsy UK

Supporting people with narcolepsy, their families, carers and others interested in improving their quality of life. They provide information about narcolepsy for education and health professionals and campaign for access to medication and benefits to support those living with this rare neurological condition.

The National Brain Appeal

The National Brain Appeal is the charity dedicated to raising much needed funds for The National Hospital for Neurology and Neurosurgery in Queen Square London.

National Tremor Foundation

The National Tremor Foundation provides patients and their families with information on essential tremor. They maintain a world-wide referral network of specialists experienced in the clinical care of essential tremor patients. They assist in the formation of local independent support groups for patients.

Nerve Tumours

Nerve Tumours UK provides support, advice and information for people diagnosed with Neurofibromatoses, their families, carers and the medical professionals involved in their care, via a Specialist Support Network, which comprises regionally based nurses, a national helpline, a fully accessible & integrated website, regional information days, clinical guidelines and information leaflets. We believe in, and promote,  equal opportunities and accessibility for all, and our support service empowers patients, enabling them to manage their condition and so achieve their potential in spite of their diagnosis.


Overcoming MS

Overcoming MS (OMS) is the world’s leading multiple sclerosis healthy lifestyle charity. They are unique in their whole-person approach and practical evidence-based focus upon self-management of MS formulated as a holistic 7-step program. They are registered to work in the UK (England, Wales and Scotland), the US and Australia.

Parkinson’s UK

Parkinson’s UK provides practical support, information and advice to people with Parkinson’s and their carers. They fund research to investigate the causes of Parkinson’s, to improve the treatments available and to develop new treatment techniques.

Polio Survivors Network

The Polio Survivors Network is a post-polio information service run by polio survivors for medical professionals and polio survivors, their families and friends. Their extensive website contains an online library of 100+ catalogued medical articles and other information.

The World-Wide Fellowship of Polio Warriors

The Polio Warriors World-Wide Fellowship works to relieve the needs of Post-Polio Syndrome (PPS) sufferers around the world, by acting as a resource, by directing sufferers to support groups, medical advice, and any other means they deem necessary. Currently this includes working to raise the awareness of the millions of polio survivors living with the symptoms of one of the most debilitating neurodegenerative conditions in the world today.

PSP Association

The PSP Association promotes research worldwide into the cause, and effective treatment and eventual cure for progressive supranuclear palsy. They provide information and support to afflicted families across Europe. They raise awareness of the disease, particularly amongst relevant health professionals and amongst the general public at large, mainly in the UK.

Ring 20 Research and Support UK CIO

Supporting and connecting families, individuals and professionals who are affected by or who come into contact with Ring Chromosome 20 Syndrome, an ultra-rare epilepsy syndrome.

Spinal Muscular Atrophy Support

We support and empower anyone affected by SMA. We are advocates for better services and access to new treatments so that people affected by SMA are empowered and enabled to live full lives. We are committed to help fund and facilitate research and to raise public and professional awareness of SMA.

Spotlight Young Onset Parkinson’s

We aim to be the ‘go to’ organisation for people with Young Onset Parkinson’s – providing or enabling access to information and support for those diagnosed at a younger age (under 50).

SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. The majority are sudden unexpected deaths in epilepsy (SUDEP) which is not fully understood. SUDEP Action is a reporting and support centre for all epilepsy deaths and works with the bereaved and professionals to make change. Deaths can be reported confidentially via the epilepsy deaths register on their website.

Sue Ryder

Sue Ryder provides specialist care and support to people with a neurological condition. They aim to be the first choice in their chosen field of activity.

Tourettes Action

Tourettes Action provides free information and support for everyone affected by tourette syndrome, promotes research into better treatments and seeks to change society’s view so that all children and adults with tourette syndrome receive the practical support and social acceptance they need to lead their lives to the full.

Transverse Myelitis Society

The Transverse Myelitis Society provides information and support for transverse myelitis sufferers, families and carers.

Trigeminal Neuralgia Association UK

Trigeminal Neuralgia Association UK provides information, support and encouragement to trigeminal neuralgia patients, their families and friends; raises awareness of the condition among medical professionals and members of the public; promotes research and serves as an information centre for current treatments and details of any advances being made in the treatment of trigeminal neuralgia.

UK Acquired Brain Injury Forum

The United Kingdom Acquired Brain Injury Forum is a not-for-profit coalition of organisations and individuals that seek to promote understanding of all aspects of acquired brain injury and provide information and expert input to policy makers and others to promote the interests of brain injured people and their families.

Associate members

Association of British Neurologists

The Association of British Neurologists aims to encourage nationwide availability of excellent and equitable neurological services. It supports neurologists and neurological trainees in their clinical practice, research and academic activities and fosters communication with patient interest groups.


Association of Chartered Physiotherapists in Neurology (ACPIN)

The Association of Chartered Physiotherapists in Neurology (ACPIN), is a charity and is one of the largest Professional Networks recognised by the Chartered Society of Physiotherapy. It is concerned with all aspects of physiotherapy related to the needs of neurologically impaired adults and their relatives and carers.  ACPIN is a dynamic and proactive group. Its function is to encourage the pursuit of excellence in the field of neurological physiotherapy practice.

British Paediatric Neurology Association

The British Paediatric Neurology Association is the professional organisation for doctors who specialise in the care of children with neurological disorders. Membership is open to those devoting the majority of their time to paediatric neurology, paediatric neurodisability and allied neurosciences.

Division of Neuropsychology (British Psychological Society)

In recent years neuropsychology has been one of the most exciting areas of science. Advances in technology have revealed many of the secrets of structure-function relationships in the living brain, their development across the lifespan and the impact of disease, injury and degeneration. These rapid advances have opened up many new research and clinical possibilities and so staying informed and up-to-date has never been so important. The Division of Neuropsychology (DoN) supports its members with training and advice, holds regular conferences and events, and contacts members with updates and news about the professional field throughout the year. Our membership has a powerful voice in raising the profile of psychology, developing standards and advancing the discipline. We champion the work of our members and the contribution psychology can make to society through lots of different channels.

The aims of the British Society of Rehabilitation Medicine are

  • to promote the development of the understanding and management of acute and chronic disabling diseases and injuries, and their consequences for the individual patient, their carers, their medical and other attendants, and society at large.
  • to promote the specialty of Rehabilitation Medicine, being defined as the application of medical skill to the diagnosis and management of disabling disease and injury of whatever cause and affecting any system of the body.
  • to advance the education of health and other professionals and the general public in the area of disability
  • to develop and promote standards for clinical care and professional working in the specialty and mechanisms for audit, appraisal and review to ensure that those standards are maintained,
  • to promote and facilitate research in the field of rehabilitation to support the evidence base which underpins good clinical practice in the specialty.

Neurology Academy

The Neurology Academy is an innovative education provider for clinicians, specialist nurses and professions allied to medicine. Their practical applicable training focuses on disease management and service transformation whilst encouraging leadership at a grassroots level. Individual specialty areas are led by an Academic Faculty of practicing healthcare professionals who shape the content, mentorship, and direction of that specialism’s Academy. Read about why they joined the Alliance here


Regional Alliances

Black Country Neurological Alliance

The Black Country Neurological Alliance (BCNA) is an umbrella organisation, led by people who are affected directly or indirectly by a neurological condition. We are part of the Neurological Alliance but are focused on the people of the Black Country, bringing them closer to services available from both statutory and voluntary bodies.

Greater Manchester Neurological Alliance

We’re members of the Neurological Alliance and board members of the Gtr Manchester Neuro Operational Delivery Network, Neurology Sub-Group at Salford Royal Hospital, Major Trauma and Critical Care Group and the Steering Group for new Community Neuro Rehab Services in north Manchester.

Hampshire Neurological Alliance

The Hampshire Neurological Alliance (HNA) covers Hampshire, Portsmouth, Southampton and the Isle of Wight. It is the local voice for people with neurological conditions and their family and carers, in the alliance area. By working together we aim to ensure a better quality of life for each and every individual affected by a neurological condition.

Lincolnshire Neurological Alliance

The Lincolnshire Neurological Alliance is an association of people and voluntary organisations with an interest in people with a neurological condition, based in Lincolnshire.

Merseyside and Cheshire Neurological Alliance

Merseyside and Cheshire Neurological Alliance brings together a range of neurological conditions charities to work on agreed priority areas in particular with health and social care providers. We have great links with Walton Neurological centre and often meet there. The group also includes a discussion on welfare benefits at each of its meetings.

Neuro Key (formerly Tees Valley, Durham, and North Yorkshire Neurological Alliance)

We work across the Tees Valley, Durham and North Yorkshire helping people who live or care for someone with a neurological condition. A neurological condition is a health disorder involving the brain and nervous system.

West Berkshire Neurological Alliance

We are an association of people and voluntary organisations with an interest in people with a neurological condition, based in and around Berkshire West.

Yorkshire & Humberside Association of Neurological Organisations (YHANO)

YHANO is a collaborative group representing neurological third sector organisations in Yorkshire and the Humber. YHANO was set up in 2009 building upon the experience of the original VOWNnet (Voluntary Organisations Workers in Neurology Network). Membership is open to any employee of neurological third sector organisations in Yorkshire and the Humber whose roles include a remit to influence health and social care service provision.

Reciprocal members

National Voices

National Voices is an umbrella organisation, set up to ensure that the needs and preferences of those affected by government health and social care policy are given full weight in its development and implementation. It brings together a broad and diverse coalition of voluntary sector organisations representing patients, service users and carers, and ensures that their voices are taken into account from the earliest possible stages of policy development by providing an effective channel of communication with policy makers.

The Neurological Alliance of Ireland

The Neurological Alliance of Ireland is the national umbrella body representing over thirty not for profit organisations working with people with neurological conditions and their families.

The Neurological Alliance of Scotland/The National Neurological Advisory Group (Scotland)

The Neurological Alliance of Scotland is an umbrella body of organisations and groups representing people living with or affected by a neurological condition.

The Neurological Alliance of Wales

The Wales Neurological Alliance is a focused and purposeful forum of not-for-profit organisations and groups representing many thousands of people affected by neurological conditions in Wales.