Neurological conditions: the case for a Modern Service Framework

Everyone living with a neurological condition should be able to live life to the fullest. But the NHS and social care are not meeting their needs.

Together with people affected by neurological conditions, the MS Society and more than 30 leading patient organisations and professional bodies, we’re calling on the government to deliver a national plan for neuro – a Modern Service Framework for neurological conditions.

Together we have developed the Case for a Modern Service Framework for Neurological Conditions.

Now we are asking you to show your support for a Modern Service Framework for neurological conditions by adding their signatures to an open letter to the Secretary of State for Health and Social Care.

The open letter calls on government to introduce a Modern Service Framework for neurological conditions. Anyone in the UK can add their signature and show their support.

We’re calling on the government to deliver a Modern Service Framework for neurological conditions

Modern Service Frameworks are decade-long NHS reform plans, built around national standards and clear accountability, that have already been committed to for other conditions. They are how the Government drives sustained, systemic change. They are not a short-term fix but a long-term commitment.

The cost of doing nothing

At least 1 in 6 people in England have a neurological condition. Neurological conditions are the leading cause of disability globally and cost the UK economy £96 billion a year. This is not a niche issue, yet there is no dedicated long-term improvement plan for neurological health and care services in England.

That’s why we’re calling on the government to deliver a Modern Service Framework for neurological conditions and drive real change for millions of people.

A once-in-a-generation opportunity to transform neuro care

Our report, developed with the MS Society and supported by organisations from across the sector, makes the case for a dedicated Modern Service Framework for neurological conditions and the actions necessary to deliver. 

 What we’re calling for

The report proposes a clear, system-wide ambition – the “moonshot” ambition for the Modern Service Framework for neurological conditions: Reduce avoidable emergency admissions for neurological conditions by 30% within 10 years.

Delivering on this ambition is underpinned by five pillars for change:

  1. Right people: a sustainable, multidisciplinary workforce, working at the top of their skills, with care coordination as a universal standard.
  2. Right care: equitable, needs-based care that integrates physical, mental and social support, not limited by diagnosis or postcode.
  3. Right time: earlier intervention, proactive monitoring and rapid access to specialist advice to prevent deterioration.
  4. Right place: a shift from hospital-centred care to integrated, community and neighbourhood models, backed by specialist networks.
  5. Right systems: robust data, digital infrastructure and accountability to drive improvement and reduce variation.

 Read  the report, Neurological Conditions: The case for a Modern Service Framework, in full here.

Supporting organisations

We have bought together a powerful coalition of organisations from across the neuro sector in support of a Modern Service Framework for neurological conditions. We’re calling on the government to join us and act for the one in six:

MS Society

The Neurological Alliance

Association of British Neurologists (ABN)

Association of Chartered Physiotherapists in Neurology (ACPIN)

Ataxia UK

Bechets UK

British Home

British Paediatric Neurology Association (BPNA)

British Polio Fellowship

British Psychological Society, Division of Neuropsychology 

British Society of Physical and Rehabilitation Medicine (BSPRM)

Chartered Society of Physiotherapy (CSP)

CSF Leak Association

Cure Parkinson’s

Dravet Syndrome UK

Dystonia UK

Epilepsy Action

FND-Dimensions

Greater Manchester Neurorehabilitation & Integrated Stroke Delivery Network (GMNISDN)

HBA Support

Headway UK

Huntington’s Disease Association (HDA)

Independent Neurorehabilitation Providers Alliance (INPA)

Inflammatory Neuropathies UK (IN-UK)

Motor Neurone Disease Association (MNDA)

MS Trust

Multiple System Atrophy Trust (MSA Trust)

Muscular Dystrophy UK

Nerve Tumours UK

Neurology Academy

Overcoming MS

PANS PANDAS UK

Parkinson’s UK

RLS-UK

Royal College of Occupational Therapists (RCOT)

Royal College of Speech and Language Therapists (RCSLT)

Spotlight YOPD

The Daisy Garland

The Migraine Trust

Tourette’s Action

United Kingdom Acquired Brain Injury Forum (UKABIF)