Members of the back the one in six hand-in delegation stand together. Big Ben is in the background.

Please help us reach everyone: share My Neuro Survey with your community

With 1 in 6 people living with a neurological condition in the UK and the Republic of Ireland, everyone knows someone who is affected. Please share My Neuro Survey with your communities and networks.

By sharing My Neuro Survey 2024 with your community, you’ll help improve services and make the case for boosting services across the NHS and social care. My Neuro Survey is the largest patient experience survey of people with all kinds of neurological conditions in the UK and the Republic of Ireland.

We want to make sure we create an accurate and representative picture of care, treatment and support for people affected by neurological conditions that drives equity of access to healthcare for everyone, from all backgrounds and walks of life.

Find out how to share My Neuro Survey 2024 with your community on this page, or download the information as a PDF.

Download PDF

How can people take part?

Online

Complete the survey online through this link if you are based in the UK:

https://revealingreality.welcomesyourfeedback.net/x1q820

Complete the survey online through this link if you are based in the Republic of Ireland: 

https://revealingreality.welcomesyourfeedback.net/mae0l0

It’s completely anonymous and secure and takes around 20 minutes to complete.

Over the phone & in other languages

Alternatively please get in touch with our survey partners Revealing Reality on +44(0)20 7735 8040 (standard network rates apply), or email myneurosurvey@revealingreality.co.uk to:

  • Complete the survey over the phone if this suits you better
  • Request to complete the survey in a preferred language.

On paper

Get in touch with the Neurological Alliance (England) by calling +44(0) 1923 882 590 (standard network rates apply) and leaving a voicemail, or emailing survey@neural.org.uk to request a paper copy.

Who can take part?

Adults and children and young people (under 18) who live with neurological condition or have a suspected diagnosis of a neurological condition can take part.

Unpaid carers, including family members, spouses and parents can also take part.

Deadline

The survey closes on 15 November 2024.

How to share My Neuro Survey with your community

  1. Share the survey link and information about how complete the survey over the phone on any social media platforms you use, such as Facebook, Twitter, Instagram or LinkedIn. 
  2. Email or text your community members directly and ask them to take part, and or/include information in your newsletter.
  3. Tell everyone you know.

Use and adapt our resources to support your sharing: we’ve made template emails, social media graphics and suggested social media posts.

Suggested social media posts 

  • Share your experiences and help improve workforce and services for everyone affected by neurological conditions – fill out My Neuro Survey here. [INSERT SURVEY LINK]
  • Need to complete #MyNeuroSurvey in another language? Call survey provider Revealing Reality’s language line on +44 (0)20 7735 8040 and ask for your language (standard network rates apply).
  • Neurological conditions are any condition that  affects the brain, spinal cord and/or nervous system. They can affect how you think, think and move. If you have a neurological condition, or think you might have one, please fill out #MyNeuroSurvey. [INSERT SURVEY LINK]

Use hashtags relevant to your community. We also suggest including #BackThe1in6 and #MyNeuroSurvey. 

Email/text message template

Your voice matters! Help us improve services for everyone affected by neurological conditions by sharing your experiences. Your insights are very important in understanding the challenges faced, and for improving treatment, services and care in neurology.  

Visit [INSERT SURVEY LINK] or call +44(0)20 7735 8040 (standard network rates apply). 

The survey is completely anonymous and it is not possible to identify participants from their responses. It will take around 20 minutes to complete. Please complete the survey by 15 November 2024. Find out more at www.neural.org.uk.

Graphics

Download ready-made graphics to go with your social media posts here.

Find editable resources here.

Questions?

Read our FAQ page here or email survey@neural.org.uk.

Thank you.