Neurology

September 11, 2024

Published: new optimal clinical pathway for neuromuscular conditions

A new optimal clinical pathway of care for neuromuscular conditions has been published. The pathway sets out what good treatment, care and support looks like for people affected by a range of neuromuscular conditions. The pathway was developed in collaboration with healthcare professionals and patient groups supporting people with neuromuscular conditions. Access the pathway here. […]
July 10, 2024

What has the #BackThe1in6 campaign achieved so far?

Thanks to your support, we’ve made some great progress towards improving support for people affected by neurological conditions, but we’re not stopping there. Here are some of the things you’ve helped to achieve through the #BackThe1in6 campaign so far. Please help to keep that momentum going! Achievements so far Thank you None of this would […]
April 4, 2024

NHS England Operational Planning Guidance for 24/25 published

Last week, just days before the new financial year, NHS England published its Priorities and Operational planning guidance for 2024/25. You can read the full document here. The document outlines key priorities for NHS spending and focus for the year ahead.  The guidance is important, as it sets out key areas of activity for the […]
April 2, 2024

Neurological conditions leading cause of ill health and disability globally

New research published in The Lancet Neurology has confirmed that neurological conditions are now the leading cause of ill health and disability globally. More than four in 10 of the world population lived with a neurological condition in 2021, approximately 3.4 billion people. 443 million years of healthy life lost Researchers calculated the overall “burden” […]
March 6, 2024

Unpacking the 2024 England Rare Disease Action Plan 

Rare Disease Day 2024 (29/02/2024) saw the publication of the third England Rare Disease Action Plan. Rare conditions are individually rare but collectively common, affecting 1 in 17 people in the UK at some point in their lifetime. Almost half of the 7,000 known rare conditions are neurological. The latest action plan builds on the […]
February 27, 2024

New research shows that implementing existing solutions could reduce the financial impact of neurological conditions by £30 billion

New research released this week shows that neurological conditions are costing the UK 4.3% of its GDP, equivalent to £96 billion a year.1 The report, produced by The Economist Impact Unit and commissioned by pharmaceutical company Roche, suggests that implementing existing interventions could reduce the financial impact of these conditions by £30.8 billion.1 Implementing existing […]