Rare disease Framework

Rare Disease Day 2023!
February 28, 2023

Department of Health and Social Care commits to improved diagnosis and education for rare conditions

A year on from the publication of the first Rare Diseases Action Plan for England, the Department of Health and Social Care has issued a 2023 action plan. This second action plan includes 13 new actions “to ensure that everyone living with a rare disease gets the treatment, care and support they need”. The action […]
January 25, 2023

Secretary of State for Health and Social Care publishes plans for Major Conditions Strategy

Yesterday the Secretary of State for Health and Social Care published a Written Ministerial Statement on plans for a Major Conditions Strategy in England. We welcome the emphasis placed on person-centred care, recognition of the need for services to work together to deliver positive outcomes, and the focus on mental health and ending health disparities.  […]