Blog
Brain Awareness Week 2026: supporting children and young people’s mental health
Rebecca’s dad had the neurological condition Huntington’s disease. For Brain Awareness Week (16-22 March 2026), Rebecca is sharing her experiences of accessing support services and the positive impact this had on her mental health as a child, as well as the challenges of shifting from children and young people’s to adults’ services. Rebecca writes: Huntington’s […]
Unpacking the 2026 England Rare Disease Action Plan: representing rare neurological conditions
Ahead of Rare Disease Day 2026 (28 February), the Department of Health and Social Care published the latest England Rare Disease Action Plan (available here) . Our Policy and External Affairs Manager, Sam Mountney, shares his thoughts. The 2026 England Action Plan represents the fifth and final plan under the current UK Rare Disease Framework […]
What does the NHS Medium-Term Planning Framework mean for neurological conditions?
Georgina Carr, Chief Executive of The Neurological Alliance (England), writes: NHS England has published its new Medium-Term Planning Framework (2026–29) setting out how the NHS intends to deliver the ambitions of the 10-Year Health Plan for England. As ever, the detail matters, and while there’s a lot to welcome, there are also reasons for concern, […]
The NHS 10-year workforce plan for England: hope for the future?
About the author Clare Addison is a senior nurse with 42 years’ experience within specialist neurosciences and acute surgery. She has been living with Parkinsons for the last nine and half years. Clare is currently a patient and public voice representative on the NHS England Neurology Clinical Reference Group which provides guidance and leadership on […]
2025 England Rare Disease Action Plan: what does it mean for people affected by rare neurological conditions?
Rare Disease Day 2025 (28 February) saw the publication of the 2025 England Rare Disease Action Plan, available in full here, but what does it mean for people affected by rare neurological conditions? Our Policy and External Affairs Manager, Sam Mountney, takes a closer look. Fourth and final plan This is the fourth England action […]
Four lessons from party conferences
Georgina Carr, CEO Every autumn, UK political parties hold their annual conferences – gatherings of politicians, party members and affiliated groups. I attended the Labour and Conservative Party conferences, and spoke to policymakers about the importance of involving people affected by neurological conditions in decisions around health, and the need to build a health system […]
