Blog
Coproduction week: working together to back the 1 in 6
Rhys Holmes, who has the neurological condition superficial siderosis, joined The Neurological Alliance’s coproduction group to help develop the #BackThe1in6 campaign and help make the views and experiences of people with neurological conditions central to everything we do. For Coproduction Week (4 – 9 July 2022) Rhys tells us what being part of the group […]
Providing insight, working together: driving the neurology agenda forward in 2022
David Martin, The Neurological Alliance’s Chair of Trustees and CEO of MS Trust, writes: I recently met Sally. She is living in pain. Sally is struggling to walk and struggling to work. Her appointment to see a neurologist is months away. Sally is one of the 176,000 people with existing or suspected neurological conditions whose […]
Shared goals, shared knowledge: raising the profile of neurorehabilitation
The Independent Neurorehabilitation Providers’ Alliance (INPA) recently joined The Neurological Alliance. Chloë Hayward from INPA writes: INPA is a collation of independent organisations providing rehabilitation for people with acquired brain injuries, spinal cord injuries and neurological conditions. Some INPA members are large companies with multiple specialist units, others have one dedicated service. There are also […]
Unwavering focus: pushing for improvement in neurological services
Dr Arani Nitkunan, consultant neurologist and Neurological Alliance Trustee, writes: As a consultant neurologist working mainly in a district general hospital in Southwest London (Croydon University Hospital), there are several reasons why I very much appreciate all the work of The Neurological Alliance. Firstly, the Alliance’s surveys (including My Neuro Survey), have informed us that […]
Alliance Member Epilepsy Action campaigning for change
Alliance member Epilepsy Action shows how they are supporting the Alliance’s goals and placing the experiences of people with living with a neurological condition front and centre as they campaign for change. Daniel Jennings, Senior Policy and Campaigns Officer and Claudia Christie, Media Officer at Epilepsy Action, write: Since Personal Independence Payments (PIP) were introduced […]
Things have changed for the better. Is that the case for your neurological condition?
Sarah Joiner, Vice Chair of the MS Trust and member of The Neurological Alliance #MyNeuroSurvey Steering Group, writes: I was diagnosed with multiple sclerosis in 1981. Back then I received care from a consultant and a small medical team. Hours of waiting all morning, an examination to see how the condition had progressed, and some […]
