Blog

November 12, 2020

Out of the Shadows: our new report launched today on the need for a better deal for people with rare neurological conditions

Dr Wendy Edwards of PSPA tells us how important our new report, Out of the Shadows, is for shining a light on rare neurological conditions, to improve the care and support people with rare neurological conditions receive along the whole care pathway Following nine months of consultation, the rare neurological conditions report, ‘Out of the Shadows’, has […]
August 13, 2020

“The resilience of Polio survivors seems to shine in the most difficult times”

Responding to COVID-19: voices from our membership We have been asking our memberships to share their experiences of COVID-19. Kripen Dhrona is Operations Director at the British Polio Fellowship, one of our newest members. He shares the Fellowship’s experience of coping with COVID-19, and how they are meeting some of the challenges they have been facing. […]
August 11, 2020

Working together: an example from Hampshire

Responding to COVID-19: voices from our membership COVID-19 has profoundly changed our lives. One possible positive change is changing how we work and collaborate with one another, as we face this virus together. We asked Anne Meader, Chair of the Hampshire Neurological Alliance and Secretary of Carers Together, to share her positive experience during these unprecedented times. Bronze […]
July 7, 2020

Neuro restart: Let’s work together to achieve a better normal

During COVID-19, vital neurological treatment, care and support has been severely disrupted. Georgina Carr, Chief Executive of the Neurological Alliance, explains why we’re calling for a restart of services as soon as it is safe to do so. Accessing the right treatment, care and support to manage a neurological condition makes all the difference. Access […]
June 18, 2020

Adapting quickly so we can be there when it matters

Responding to COVID-19: voices from our membership Sue Ryder supports people with neurological conditions, terminal illness or bereavement. The charity’s neurological care centres across the UK offer a range of residential and community based neurological services. This includes specialist neurological rehabilitation and support tailored to the individual needs of people with a range of neurological conditions. […]
May 14, 2020

Responding to COVID-19: voices from our membership

BASIC – Brain And Spinal Injury Centre – provides community rehabilitation and support services from their Centre in Salford, Greater Manchester. Each year the team support around 500 people with acquired brain and spinal injury or long term neurological conditions, stepping in once NHS input has ceased but their recovery journey is ongoing. Chief Executive Wendy […]