News

This month, Parliamentarians from five All Party Parliamentary Groups (APPGs) on different neurological conditions came together to hear about how services for people with neurological conditions have been impacted during COVID-19, with a particular focus on rehabilitation. The session was jointly coordinated by the APPG secretariats, Parkinson’s UK, MS Society, SUDEP Action, MND Association, Epilepsy […]

Today the Neurological Alliance launch the results of their recent survey of more than 1,600 people with neurological conditions, with over 7 in 10 respondents reporting delays to their medical appointments as a result of COVID-19. This means people with long-term neurological conditions could be missing out on the vital assessments and treatment that help them to […]

The UK Framework for Rare Diseases, published on 09 January, outlines the principles behind how people with a rare conditions will be diagnosed, treated and cared for in years to come. It provides the backdrop for how services need to improve for rare disease patients and their families/carers. Unusually for health, the Framework applies across all […]

The National Institute for Health and Care Excellence (NICE) has published a new guideline on suspected neurological conditions: recognition and referral. The Neurological Alliance is disappointed with the result. The guideline is intended to help non-specialist healthcare professionals, such as GPs, working in primary care to identify people who should be referred on for specialist investigation […]