Policy group

About Policy Group

The Neurological Alliance holds quarterly Policy Group meetings, which bring together representatives from full and affiliate member organisations to input and feedback on the Alliance’s policy work.  You can read the terms of reference here. The policy group:

  • makes recommendations on Alliance policy and activity, ensuring that these reflect the needs and objectives of its member organisations;
  • builds collective ownership of the Alliance beyond staff and Trustees and to promote team-working across the member organisations;
  • provides a forum for policy and campaigns staff of member organisations to share information and provide mutual support;
  • ensures alignment between member organisations’ priorities and the collective needs of the Alliance; and
  • ensures that all member organisations, large and small, can contribute to the work of the Alliance.

Policy group also has a role in helping to devise and oversee the Alliance’s outputs, including policy statements, the Alliance’s workplan; campaign activities, and any Alliance manifestos.

The Group elects its own Chair(s) and Vice-Chair(s) each with tenure of up to two years. 

Policy group membership

Membership of the Group is open to all full and affiliate member organisations of The Neurological Alliance. Smaller organisations are particularly encouraged to participate. Each organisation can send a delegate, ideally a policy or campaigns specialist or a staff member, Trustee or volunteer with responsibility for policy or campaigning work. Group members unable to attend meetings can contribute in advance by e-mail or (where facilities allow) join by teleconference.

Policy Group Chairs and Vice-Chairs

Co-Chairs – Frankie Bowyer, Senior Policy Officer, MS Society and Charlotte Gerada Policy and Public Affairs Manager, Huntington’s Disease Association (currently on maternity leave)

We are currently looking for two new Vice-Chairs for the Policy Group – please do get in touch if you would like to know more about the role at info@neural.org.uk.