My Neuro Survey: help us decide what happens next
Our latest national survey of people with neurological conditions, My Neuro Survey, is now complete. More than 8,500 people across the UK shared their experiences. Thank you to everyone who told us about their experiences of life with a neurological condition, who shared the survey with family and friends or promoted the survey online.
We’ll be sharing the results publicly in the early summer with a campaign calling for changes to improve treatment, care and support. This campaign will be shaped by people with and affected by neurological conditions. That’s where you come in!
Join our coproduction group and shape the future
*27/04/2022*: Applications to the coproduction group are now closed. Thank you to everyone who has applied or helped to publicise the group.
Coproduction is all about bringing together people who have different skills and experiences, especially those who have a personal connection with or lived experience of neurological conditions, to find the best solutions.
Join our coproduction group of people with and affected by neurological conditions who will share their experiences and ideas. You’ll work alongside Alliance staff and member organisations to help shape the My Neuro Survey launch and campaign. You don’t need any experience of coproduction or campaigns. We want to hear from everyone.
There are over 600 known neurological conditions, and we work hard to represent all people affected by them.
It’s important that we have people with a connection to different neurological conditions as part of the group.
We also want to make sure that rarer neurological conditions and groups who are often underrepresented in research and coproduction are involved. This includes people from Black, Asian and Minority Ethnic backgrounds and the LGBTQIA+ community.
Read more about what’s involved in our coproduction group.
Apply by Sunday 27 March 2022.
Ready to take part and make a difference for the whole community?
For an informal chat, support with signing up or any questions email firstname.lastname@example.org or call 01923 882590.
Please note that recruitment will be on a rolling basis and might close before the end date if we receive lots of applications. We recommend you sign up early if you’d like to take part!