Health and social care

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July 8, 2022

Together we are stronger: coproduction and creating real impact

Our coproduction coordinator Jess Mansel describes how working with coproduction volunteers is shaping our campaign to improve neuro services. This week (4 – 9 July 2022) is Coproduction Week, and the theme is impact. We’ve been working with a coproduction group of 12 people who are affected by neurological conditions. Together, they are sharing their […]
July 6, 2022

Coproduction week: working together to back the 1 in 6

Rhys Holmes, who has the neurological condition superficial siderosis, joined The Neurological Alliance’s coproduction group to help develop the #BackThe1in6 campaign and help make the views and experiences of people with neurological conditions central to everything we do. For Coproduction Week (4 – 9 July 2022) Rhys tells us what being part of the group […]
February 28, 2022

England Rare Conditions Action Plan falls short on mental health

The Department of Health and Social Care have published the first Rare Diseases Action Plan for England, coinciding with Rare Disease Day on Monday 28 February 2022. The plan sets out the Government’s plans to improve the speed of diagnosis, access to genetic testing and how they assess access to medicines for rare conditions. The […]
December 8, 2021

We have never needed patient advocacy and citizen advocacy more than we need it now

Caroline Clarke, CEO at the Royal Free London NHS Foundation Trust, writes: Thank you for giving me the opportunity to speak at your AGM and to restate what I said then to your members in this blog. I am the CEO at the Royal Free London NHS Foundation Trust, a group of hospitals in North […]
White text on a purple background: news @NeuroAlliance
October 25, 2021

We want you! My Neuro Survey is now open

People living with neurological conditions across the UK are being asked to take part in the largest neurological survey to help improve vital services and support. The Neurological Alliance – a leading coalition of over 70 charities working to transform quality of life for people with neurological conditions – runs My Neuro Survey every two […]
White text on a purple background: news @NeuroAlliance
September 8, 2021

Government announces plans to tackle NHS waiting lists and social care crisis

The UK Government has announced plans to reform health and care, in a bid to reduce elective care waiting lists in the NHS and address the ongoing crisis in social care. The plans include a new ‘Health and Care levy’, which the Government estimates will raise an additional £12 billion per year on average to […]