Rare Disease
Government confirms UK Rare Disease Framework extension until 2027
The Government has confirmed a one-year extension of the UK Rare Disease Framework – the UK-wide framework and associated national action plans had been due to come to an end in 2026 after five years. Ashely Dalton MP, Parliamentary Under-Secretary of State for Public Health and Prevention at the Department of Health and Social Care […]
Unpacking the 2024 England Rare Disease Action Plan
Rare Disease Day 2024 (29/02/2024) saw the publication of the third England Rare Disease Action Plan. Rare conditions are individually rare but collectively common, affecting 1 in 17 people in the UK at some point in their lifetime. Almost half of the 7,000 known rare conditions are neurological. The latest action plan builds on the […]
Department of Health and Social Care commits to improved diagnosis and education for rare conditions
A year on from the publication of the first Rare Diseases Action Plan for England, the Department of Health and Social Care has issued a 2023 action plan. This second action plan includes 13 new actions “to ensure that everyone living with a rare disease gets the treatment, care and support they need”. The action […]
