neurological conditions

NeuroLifeNow app - Help Shape The Future of Neural Care
August 17, 2022

Expanding data and reaching seldom-heard voices: help take NeuroLifeNow to the next level

The Brain and Spine Foundation and The Neurological Alliance have been running the NeuroLifeNow app together for the past year. It’s a platform to support people with neurological conditions to share their stories and gather real-time data around their experience of care, treatment, support and daily living. Neurological Alliance Trustee and Brain and Spine Foundation […]
A group of people discussing mental health. The man in the centre has a serious expression while the others look supportive.
July 27, 2022

Recognising mental wellbeing needs: our response to the Government’s mental health and wellbeing call for evidence

Mental health and wellbeing affect us all, but don’t affect us all equally. People with neurological conditions are more likely to need mental health support than those without. While this is also true of people with other long-term health conditions, there is a unique, complex and often poorly understood interplay between the physical and the […]
July 8, 2022

Together we are stronger: coproduction and creating real impact

Our coproduction coordinator Jess Mansel describes how working with coproduction volunteers is shaping our campaign to improve neuro services. This week (4 – 9 July 2022) is Coproduction Week, and the theme is impact. We’ve been working with a coproduction group of 12 people who are affected by neurological conditions. Together, they are sharing their […]
July 6, 2022

Coproduction week: working together to back the 1 in 6

Rhys Holmes, who has the neurological condition superficial siderosis, joined The Neurological Alliance’s coproduction group to help develop the #BackThe1in6 campaign and help make the views and experiences of people with neurological conditions central to everything we do. For Coproduction Week (4 – 9 July 2022) Rhys tells us what being part of the group […]
June 1, 2022

NHS England and NHS Improvement publish roadmap for delegation of specialised services

NHS England and NHS Improvement (NHSE/I) have set out their plans to delegate responsibility for a range of services to an ‘Integrated Care System’ (ICS) level. This means that many services that are currently planned and commissioned at a national level (i.e. specialised) will now be planned and commissioned at a regional level. The ‘Roadmap […]
May 31, 2022

NHS England and NHS Improvement to appoint new National Clinical Directors for neuroscience

NHS England and NHS Improvement (NHSE/I) have confirmed they will appoint new National Clinical Directors (NCDs) for neurology, and neurosurgery and spinal surgery. A long time coming The roles are an important step in tackling the significant unwarranted variation in treatment, care and support for the 1 in 6 living with a neurological condition in […]