neurological conditions

March 6, 2024

Unpacking the 2024 England Rare Disease Action Plan 

Rare Disease Day 2024 (29/02/2024) saw the publication of the third England Rare Disease Action Plan. Rare conditions are individually rare but collectively common, affecting 1 in 17 people in the UK at some point in their lifetime. Almost half of the 7,000 known rare conditions are neurological. The latest action plan builds on the […]
February 27, 2024

Too costly to wait: provide care and support now and reduce the economic impact of neurological conditions

Blog by Georgina Carr, Chief Executive of The Neurological Alliance. This week new research from the Economist Unit, sponsored by Roche, found that neurological conditions cost at least £96 billion annually – and that these costs could be reduced by more than £30 billion, if care was improved, and existing options for treatment and care […]
February 27, 2024

New research shows that implementing existing solutions could reduce the financial impact of neurological conditions by £30 billion

New research released this week shows that neurological conditions are costing the UK 4.3% of its GDP, equivalent to £96 billion a year.1 The report, produced by The Economist Impact Unit and commissioned by pharmaceutical company Roche, suggests that implementing existing interventions could reduce the financial impact of these conditions by £30.8 billion.1 Implementing existing […]
January 31, 2024

Published: new optimal clinical pathways for neurological conditions

New optimal clinical pathways of care have been published for a range of neurological conditions, including epilepsy and neurological autoimmune diseases, and crosscutting pathways for neurogenetics and rehabilitation for adults with neurological conditions. Access the pathways here. The pathways set out what good treatment, care and support looks like. This includes treatment and support for […]
Three people talking animatedly on the set of Our Unique Brain.
January 10, 2024

“Inside Neurology: Our Unique Brain”: national media boost for neurological conditions

The Neurological Alliance has worked with ITN Business as part of their new news-style programme called “Inside Neurology: Our Unique Brain”.  The programme, produced by ITN Business in partnership with Alliance member organisation The Brain Charity, highlights the positive efforts being made to support people living with neurological conditions and their loved ones.  Neurological Alliance […]
Pen on paper, with an emphatic signature.
December 7, 2023

Alliance calls on new Health and Social Care Secretary for action to #BackThe1in6 

Together with over 35 member organisations, The Neurological Alliance has written to the new Secretary of State for Health and Social Care, Victoria Atkins, calling for action to improve services and support for the one in six of us with a neurological condition.  No official response to petition supported by almost 20,000 people  The letter, […]