neurological conditions

June 19, 2023

New epilepsy service tool launched

The Neurological Alliance has today launched a new tool to help improve epilepsy services. The tool, developed in collaboration with epilepsy organisations, people affected by epilepsy and healthcare professionals, aims to be a ‘one stop shop’ for anyone interested in improving epilepsy care to find the evidence they need. Helping to make the case for […]
Members of the back the one in six hand-in delegation stand together. Big Ben is in the background.
June 6, 2023

Over 19,000 people affected by neurological conditions and 100 organisations back Neuro Taskforce petition

The Neurological Alliance continues to call on the government to back the one in six people the UK who have a neurological condition and improve workforce and services for the neurological community. A delegation of people affected by neuro conditions, representatives from Alliance member organisations, and Alliance staff presented a petition to the Department of […]
White text on a purple background: news @NeuroAlliance
May 17, 2023

Major Conditions Strategy call for evidence a missed opportunity to Back the 1 in 6

Today (Wednesday 17th May) the Government has launched a six-week call for evidence on the Major Conditions Strategy. Despite more than 40 organisations calling for a wider range of neurological conditions to be covered in the strategy, the call for evidence focuses on just a few condition areas. We are yet to receive a response to […]
White text on a purple background: news @NeuroAlliance
April 5, 2023

Autonomy and accountability in Integrated Care Systems: unpacking the Hewitt Review and Health & Social Care Select Committee report

In November 2022 the Chancellor, Jeremy Hunt, announced a review into the oversight of governance of Integrated Care Systems (ICSs) chaired by former Secretary of State for Health and current Chair of Norfolk and Waveney ICS, Patricia Hewitt. The findings of the review were published yesterday (04/04/2023) and are available in full here. The Health […]
White text on a purple background: news @NeuroAlliance
March 22, 2023

Major Conditions Strategy is a golden opportunity to improve support for people affected by neurological conditions, charities urge

44 organisations from across England are today urging the Secretary of State for Health and Care, Stephen Barclay, not to leave the one in six people affected by neurological conditions behind, and make sure they are included as part of the forthcoming Major Conditions Strategy. The Neurological Alliance – a leading coalition of over 90 […]
Rare Disease Day 2023!
February 28, 2023

Department of Health and Social Care commits to improved diagnosis and education for rare conditions

A year on from the publication of the first Rare Diseases Action Plan for England, the Department of Health and Social Care has issued a 2023 action plan. This second action plan includes 13 new actions “to ensure that everyone living with a rare disease gets the treatment, care and support they need”. The action […]