patient voice

January 19, 2022

Unwavering focus: pushing for improvement in neurological services

Dr Arani Nitkunan, consultant neurologist and Neurological Alliance Trustee, writes: As a consultant neurologist working mainly in a district general hospital in Southwest London (Croydon University Hospital), there are several reasons why I very much appreciate all the work of The Neurological Alliance.  Firstly, the Alliance’s surveys (including My Neuro Survey), have informed us that […]
December 15, 2021

Things have changed for the better. Is that the case for your neurological condition?

Sarah Joiner, Vice Chair of the MS Trust and member of The Neurological Alliance #MyNeuroSurvey Steering Group, writes: I was diagnosed with multiple sclerosis in 1981.   Back then I received care from a consultant and a small medical team.  Hours of waiting all morning, an examination to see how the condition had progressed, and some […]
December 8, 2021

We have never needed patient advocacy and citizen advocacy more than we need it now

Caroline Clarke, CEO at the Royal Free London NHS Foundation Trust, writes: Thank you for giving me the opportunity to speak at your AGM and to restate what I said then to your members in this blog. I am the CEO at the Royal Free London NHS Foundation Trust, a group of hospitals in North […]
White text on a purple background: news @NeuroAlliance
December 2, 2021

Celebrating achievements across the neuro community

As we publish our annual report, we reflect on the Alliance’s activities in the last financial year (July 2020 – June 2021), celebrate achievements from across the neurological community, and look to the future.
White text on purple background reads: consultation request: rehabilitation for chronic neurological conditions
June 23, 2021

Consultation: Send in Your Comments on the NICE Rehab Guideline

We are preparing a response to the consultation on the draft guideline on Rehabilitation for Chronic Neurological Disorders Including Traumatic Brain Injury and need your input by 5pm 1st July 2021. All member organisations are invited to leave their comments. If you’d like to take part, please review the consultation documents and respond to the […]