patient voice
Children and young people affected by neuro conditions face difficulties accessing vital services and support
Children and young people affected by neurological conditions are facing difficulties accessing vital services and support, the latest analysis by The Neurological Alliance shows. The Neurological Alliance’s latest analysis of My Neuro Survey data highlights the experiences of children and young people (people under the age of 18) with neurological conditions or suspected neurological conditions. […]
LGBT people affected by neurological conditions report worse mental wellbeing, My Neuro Survey shows
Today we publish new analysis of My Neuro Survey responses that shows that people affected by neurological conditions and who identify as gay, lesbian, bisexual or trans often report worse experiences of care, including poor access to support for their mental wellbeing. Using data gathered through My Neuro Survey, the largest patient experience survey of […]
To the new Prime Minister, on behalf of the one in six
National political leadership to improve services for people affected by neurological conditions has never been more critical. With a new Prime Minister in post, and ministerial changes afoot, the Government has an opportunity to back the one in six people living with a neurological condition in the UK and bring about much needed change. We […]
Our response to the Health and Social Care Committee Inquiry on ICS accountability and autonomy
The Health and Social Care Committee launched an inquiry into how Integrated Care Systems (ICSs) will deliver joined up health and care services to meet the needs of their local populations. The inquiry also considered how ICSs could and should balance increased flexibility over budgets and commissioning with the need for clear accountability. We responded […]
Expanding data and reaching seldom-heard voices: help take NeuroLifeNow to the next level
The Brain and Spine Foundation and The Neurological Alliance have been running the NeuroLifeNow app together for the past year. It’s a platform to support people with neurological conditions to share their stories and gather real-time data around their experience of care, treatment, support and daily living. Neurological Alliance Trustee and Brain and Spine Foundation […]
Recognising mental wellbeing needs: our response to the Government’s mental health and wellbeing call for evidence
Mental health and wellbeing affect us all, but don’t affect us all equally. People with neurological conditions are more likely to need mental health support than those without. While this is also true of people with other long-term health conditions, there is a unique, complex and often poorly understood interplay between the physical and the […]
