patient voice

January 31, 2024

Published: new optimal clinical pathways for neurological conditions

New optimal clinical pathways of care have been published for a range of neurological conditions, including epilepsy and neurological autoimmune diseases, and crosscutting pathways for neurogenetics and rehabilitation for adults with neurological conditions. Access the pathways here. The pathways set out what good treatment, care and support looks like. This includes treatment and support for […]
A group of people discussing mental health. The man in the centre has a serious expression while the others look supportive.
July 7, 2023

What now for ICSs?

By Georgina Carr, Chief Executive of The Neurological Alliance I recently attended the NHS Confederation Expo, during which there was an empassioned plea from NHS England leaders to stick with Integrated Care Systems (ICSs) (including beyond the next General Election, which has to take place before January 2025). In parallel, the Government also published it’s […]
Members of the back the one in six hand-in delegation stand together. Big Ben is in the background.
July 5, 2023

#BackThe1in6: coproduction, collaboration and campaigning to create the Neuro Taskforce

The Neurological Alliance’s coproduction group of people affected by neurological conditions has been vital to our work over the last year. They have been a driving force behind the development of the #BackThe1in6 campaign and the petition calling on all UK governments to work together to create a Neuro Taskforce to improve workforce and services […]
December 1, 2022

New clinical leadership to lead transformation in neuroscience 

The Neurological Alliance welcomes the appointment of new national clinical directors in neurology, spinal surgery and neurosurgery announced today. Dr Niranjanan Nirmalananthan, Consultant Neurologist at St George’s Hospital, has been appointed National Clinical Director (NCD) for Neurology. Mr David Cumming, Consultant Spinal Surgeon, East Suffolk & North Essex NHS Foundation Trust has been appointed NCD for Spinal […]
October 12, 2022

Children and young people affected by neuro conditions face difficulties accessing vital services and support

Children and young people affected by neurological conditions are facing difficulties accessing vital services and support, the latest analysis by The Neurological Alliance shows. The Neurological Alliance’s latest analysis of My Neuro Survey data highlights the experiences of children and young people (people under the age of 18) with neurological conditions or suspected neurological conditions. […]
October 3, 2022

LGBT people affected by neurological conditions report worse mental wellbeing, My Neuro Survey shows

Today we publish new analysis of My Neuro Survey responses that shows that people affected by neurological conditions and who identify as gay, lesbian, bisexual or trans often report worse experiences of care, including poor access to support for their mental wellbeing. Using data gathered through My Neuro Survey, the largest patient experience survey of […]