patient voice
Brain Awareness Week 2026: supporting children and young people’s mental health
Rebecca’s dad had the neurological condition Huntington’s disease. For Brain Awareness Week (16-22 March 2026), Rebecca is sharing her experiences of accessing support services and the positive impact this had on her mental health as a child, as well as the challenges of shifting from children and young people’s to adults’ services. Rebecca writes: Huntington’s […]
What does the NHS Medium-Term Planning Framework mean for neurological conditions?
Georgina Carr, Chief Executive of The Neurological Alliance (England), writes: NHS England has published its new Medium-Term Planning Framework (2026–29) setting out how the NHS intends to deliver the ambitions of the 10-Year Health Plan for England. As ever, the detail matters, and while there’s a lot to welcome, there are also reasons for concern, […]
The NHS 10-year workforce plan for England: hope for the future?
About the author Clare Addison is a senior nurse with 42 years’ experience within specialist neurosciences and acute surgery. She has been living with Parkinsons for the last nine and half years. Clare is currently a patient and public voice representative on the NHS England Neurology Clinical Reference Group which provides guidance and leadership on […]
New GIRFT Clinical Leads Appointed to Drive Improvements in Neurology Services
The Neurological Alliance welcomes the appointment of two new clinical leads to NHS England’s Getting It Right First Time (GIRFT) programme to lead work on improving adult neurology services in England. Dr Niranjanan Nirmalananthan (St George’s University Hospitals NHS Trust and current NHS England National Clinical Director for Neurology) and Dr Adrian Wills (Nottingham University […]
Neurological Alliance response to the NHS 10-Year Plan
The Government today published its new 10-Year Plan for the NHS. The Plan sets out the Government’s vision to move care closer to home, harness digital innovation, and prioritise prevention of ill health. Plan strong in ambition and requires collaborative implementation We welcome elements of the Plan that could improve outcomes for people affected by […]
Just One in Three Say NHS Care Meets Their Needs: New Survey Exposes Gaps in services for people affected by neurological conditions
People living with neurological conditions across England are being failed by a health system that is struggling to meet even basic needs, according to new findings from My Neuro Survey, the largest patient experience survey of its kind. Published today by The Neurological Alliance, the survey reveals that just 1 in 3 respondents felt the […]
