patient voice

Big Ben
September 7, 2022

To the new Prime Minister, on behalf of the one in six

National political leadership to improve services for people affected by neurological conditions has never been more critical. With a new Prime Minister in post, and ministerial changes afoot, the Government has an opportunity to back the one in six people living with a neurological condition in the UK and bring about much needed change. We […]
August 31, 2022

Our response to the Health and Social Care Committee Inquiry on ICS accountability and autonomy

The Health and Social Care Committee launched an inquiry into how Integrated Care Systems (ICSs) will deliver joined up health and care services to meet the needs of their local populations. The inquiry also considered how ICSs could and should balance increased flexibility over budgets and commissioning with the need for clear accountability. We responded […]
NeuroLifeNow app - Help Shape The Future of Neural Care
August 17, 2022

Expanding data and reaching seldom-heard voices: help take NeuroLifeNow to the next level

The Brain and Spine Foundation and The Neurological Alliance have been running the NeuroLifeNow app together for the past year. It’s a platform to support people with neurological conditions to share their stories and gather real-time data around their experience of care, treatment, support and daily living. Neurological Alliance Trustee and Brain and Spine Foundation […]
A group of people discussing mental health. The man in the centre has a serious expression while the others look supportive.
July 27, 2022

Recognising mental wellbeing needs: our response to the Government’s mental health and wellbeing call for evidence

Mental health and wellbeing affect us all, but don’t affect us all equally. People with neurological conditions are more likely to need mental health support than those without. While this is also true of people with other long-term health conditions, there is a unique, complex and often poorly understood interplay between the physical and the […]
Placeholder
July 8, 2022

Together we are stronger: coproduction and creating real impact

Our coproduction coordinator Jess Mansel describes how working with coproduction volunteers is shaping our campaign to improve neuro services. This week (4 – 9 July 2022) is Coproduction Week, and the theme is impact. We’ve been working with a coproduction group of 12 people who are affected by neurological conditions. Together, they are sharing their […]
July 6, 2022

Coproduction week: working together to back the 1 in 6

Rhys Holmes, who has the neurological condition superficial siderosis, joined The Neurological Alliance’s coproduction group to help develop the #BackThe1in6 campaign and help make the views and experiences of people with neurological conditions central to everything we do. For Coproduction Week (4 – 9 July 2022) Rhys tells us what being part of the group […]