Together for the 1 in 6: findings from My Neuro Survey

1 in 6 people in the UK live with a neurological condition, but there simply isn’t the workforce or services in place to provide the support they need.

From a lack of mental wellbeing support, delays to life changing treatment and care and a lack of information and support at diagnosis, over 8,500 people living with or affected by neurological conditions across the UK shared their experiences in the 2021/22 My Neuro Survey, which closed in March 2022.

Every two years, The Neurological Alliance runs My Neuro Survey to give a picture of the experience of care, treatment and support for people with neurological conditions.

The 2021/22 survey was UK wide for the first time and run in partnership with the Neurological Alliances of Scotland and Wales and the Northern Ireland Neurological Charities Alliance.

There was also a version specifically for children and young people.

Findings from My Neuro Survey – June 2022

Complete datasets – June 2022

Initial Adult Data – My Neuro Survey: Initial Adult Data Tables

Initial Children and Young People Data – My Neuro Survey: Initial Children and Young People Data Tables

Technical Report – My Neuro Survey: Technical Report

Find out more about how we are using the data to back the one in six people in the UK living with a neurological condition.