Blog
Forwards into 2021.
Since the start of the year we have been discussing our priorities as a team for the Alliance and setting objectives for 2021. At the beginning of January we welcomed back Katharine McIntosh as our policy manager and said farewell to Judy who worked so hard during 2020 to cover for Katharine and much more […]
The UK Rare Diseases Framework – New hope, or same-old, same-old?
A blog post by our Trustee and CEO of Ataxia UK, Sue Millman In general, most neurological services for people with ataxia haven’t fared well during the Covid-19 pandemic, and it’s the same right across neurology. Most face-to-face outpatients’ clinics have been cancelled, or changed to telephone appointments or virtual consultations – with serious consequences […]
New digital tool to encourage people with neurological conditions to share their experiences
Yesterday the Brain and Spine Foundation and the Neurological Alliance launched a new mobile app and website to support people with neurological conditions to more easily share their experiences of care. The app, ‘NeuroLifeNow’ has been designed in response to service disruptions in neurological treatment, care and support exacerbated by Covid-19. The pilot, which launched […]
Returning to work in 2021…
Katharine McIntosh, our Policy and External Affairs Manager, returns to work this month having been on maternity leave since April 2020. Here she writes about her hopes for 2021, and what it feels like to return to work amidst the significant impacts of COVID-19 on people with neurological conditions and the health and care system. […]
My priorities as Chair of the Alliance
Our new Chair and Chief Executive of the MS Trust, David Martin, sets out his priorities for the future of the Alliance and care for people affected by neurological conditions. We will be pumping up the volume at the Neuro Alliance in 2021 so that more people across the neurology sector get to have their […]
NICE Quality Standard on suspected neurological conditions published
Today the National Institute for Health and Care Excellence (NICE) has published its ‘Suspected neurological conditions: recognition and referral‘ Quality Standard. The Standard is intended to support more effective and timely diagnosis of people with possible neurological conditions, and contain six areas for specific improvement and information about how these may be measured. The Standards […]
