Blog
Parliamentarians hear from people with neurological conditions about how they have been impacted during the pandemic
This month, Parliamentarians from five All Party Parliamentary Groups (APPGs) on different neurological conditions came together to hear about how services for people with neurological conditions have been impacted during COVID-19, with a particular focus on rehabilitation. The session was jointly coordinated by the APPG secretariats, Parkinson’s UK, MS Society, SUDEP Action, MND Association, Epilepsy […]
Out of the Shadows: our new report launched today on the need for a better deal for people with rare neurological conditions
Dr Wendy Edwards of PSPA tells us how important our new report, Out of the Shadows, is for shining a light on rare neurological conditions, to improve the care and support people with rare neurological conditions receive along the whole care pathway Following nine months of consultation, the rare neurological conditions report, ‘Out of the Shadows’, has […]
“The resilience of Polio survivors seems to shine in the most difficult times”
Responding to COVID-19: voices from our membership We have been asking our memberships to share their experiences of COVID-19. Kripen Dhrona is Operations Director at the British Polio Fellowship, one of our newest members. He shares the Fellowship’s experience of coping with COVID-19, and how they are meeting some of the challenges they have been facing. […]
Working together: an example from Hampshire
Responding to COVID-19: voices from our membership COVID-19 has profoundly changed our lives. One possible positive change is changing how we work and collaborate with one another, as we face this virus together. We asked Anne Meader, Chair of the Hampshire Neurological Alliance and Secretary of Carers Together, to share her positive experience during these unprecedented times. Bronze […]
People with neurological conditions have missed out on vital treatment and support
Today the Neurological Alliance launch the results of their recent survey of more than 1,600 people with neurological conditions, with over 7 in 10 respondents reporting delays to their medical appointments as a result of COVID-19. This means people with long-term neurological conditions could be missing out on the vital assessments and treatment that help them to […]
Neuro restart: Let’s work together to achieve a better normal
During COVID-19, vital neurological treatment, care and support has been severely disrupted. Georgina Carr, Chief Executive of the Neurological Alliance, explains why we’re calling for a restart of services as soon as it is safe to do so. Accessing the right treatment, care and support to manage a neurological condition makes all the difference. Access […]
