Health and social care

October 3, 2022

LGBT people affected by neurological conditions report worse mental wellbeing, My Neuro Survey shows

Today we publish new analysis of My Neuro Survey responses that shows that people affected by neurological conditions and who identify as gay, lesbian, bisexual or trans often report worse experiences of care, including poor access to support for their mental wellbeing. Using data gathered through My Neuro Survey, the largest patient experience survey of […]
Big Ben
September 7, 2022

To the new Prime Minister, on behalf of the one in six

National political leadership to improve services for people affected by neurological conditions has never been more critical. With a new Prime Minister in post, and ministerial changes afoot, the Government has an opportunity to back the one in six people living with a neurological condition in the UK and bring about much needed change. We […]
August 31, 2022

Our response to the Health and Social Care Committee Inquiry on ICS accountability and autonomy

The Health and Social Care Committee launched an inquiry into how Integrated Care Systems (ICSs) will deliver joined up health and care services to meet the needs of their local populations. The inquiry also considered how ICSs could and should balance increased flexibility over budgets and commissioning with the need for clear accountability. We responded […]
July 8, 2022

Together we are stronger: coproduction and creating real impact

Our coproduction coordinator Jess Mansel describes how working with coproduction volunteers is shaping our campaign to improve neuro services. This week (4 – 9 July 2022) is Coproduction Week, and the theme is impact. We’ve been working with a coproduction group of 12 people who are affected by neurological conditions. Together, they are sharing their […]
July 6, 2022

Coproduction week: working together to back the 1 in 6

Rhys Holmes, who has the neurological condition superficial siderosis, joined The Neurological Alliance’s coproduction group to help develop the #BackThe1in6 campaign and help make the views and experiences of people with neurological conditions central to everything we do. For Coproduction Week (4 – 9 July 2022) Rhys tells us what being part of the group […]
February 28, 2022

England Rare Conditions Action Plan falls short on mental health

The Department of Health and Social Care have published the first Rare Diseases Action Plan for England, coinciding with Rare Disease Day on Monday 28 February 2022. The plan sets out the Government’s plans to improve the speed of diagnosis, access to genetic testing and how they assess access to medicines for rare conditions. The […]