Health and social care
Coproduction week: working together to back the 1 in 6
Rhys Holmes, who has the neurological condition superficial siderosis, joined The Neurological Alliance’s coproduction group to help develop the #BackThe1in6 campaign and help make the views and experiences of people with neurological conditions central to everything we do. For Coproduction Week (4 – 9 July 2022) Rhys tells us what being part of the group […]
England Rare Conditions Action Plan falls short on mental health
The Department of Health and Social Care have published the first Rare Diseases Action Plan for England, coinciding with Rare Disease Day on Monday 28 February 2022. The plan sets out the Government’s plans to improve the speed of diagnosis, access to genetic testing and how they assess access to medicines for rare conditions. The […]
We have never needed patient advocacy and citizen advocacy more than we need it now
Caroline Clarke, CEO at the Royal Free London NHS Foundation Trust, writes: Thank you for giving me the opportunity to speak at your AGM and to restate what I said then to your members in this blog. I am the CEO at the Royal Free London NHS Foundation Trust, a group of hospitals in North […]
We want you! My Neuro Survey is now open
People living with neurological conditions across the UK are being asked to take part in the largest neurological survey to help improve vital services and support. The Neurological Alliance – a leading coalition of over 70 charities working to transform quality of life for people with neurological conditions – runs My Neuro Survey every two […]
Government announces plans to tackle NHS waiting lists and social care crisis
The UK Government has announced plans to reform health and care, in a bid to reduce elective care waiting lists in the NHS and address the ongoing crisis in social care. The plans include a new ‘Health and Care levy’, which the Government estimates will raise an additional £12 billion per year on average to […]
Neurological Alliance: Collaboration is vital in implementing new Health and Social Care Data Strategy
The Neurological Alliance welcomes many of the commitments outlined in the Department of Health and Social Care’s draft data strategy published on 22nd June 2021. However, more needs to be done to ensure that people with neurological conditions and their support groups are directly involved in shaping these initiatives – we will be working with […]
