May 14, 2020

Responding to COVID-19: voices from our membership

BASIC – Brain And Spinal Injury Centre – provides community rehabilitation and support services from their Centre in Salford, Greater Manchester. Each year the team support around 500 people with acquired brain and spinal injury or long term neurological conditions, stepping in once NHS input has ceased but their recovery journey is ongoing. Chief Executive Wendy […]
May 4, 2020

Responding to COVID-19: GAIN

Responding to COVID-19: voices from our membership The Guillain-Barré & Associated Inflammatory Neuropathies (GAIN) team support people affected by Guillain-Barré syndrome (GBS) and chronic inflammatory demyelinating polyneuropathy (CIDP) in the UK and Ireland. Chief Executive Caroline Morrice blogs about the challenges facing those they support, and how the team is adapting to a new normal. When we […]
March 12, 2020

Chief Exec Reflects

In our new blog post, below, our Chief Executive Georgina Carr reflects on her first month working at The Neurological Alliance. What a difference a month makes I have been in post for just over six weeks now, and it has been a fantastic whirlwind of listening, learning and very warm welcomes from across the sector. I […]
March 11, 2020

Why I’ve launched a petition for better social care – Nikkita Otu

My name is Nikkita Otu. I was 18 when I was diagnosed with severe epilepsy, but I started having seizures as early as 18 months old. There were years in-between when I didn’t have any seizures, but when they returned, they got worse. Now, I’m 29 years old, and a mum to my son. I […]
January 11, 2020

UK Framework for Rare Diseases published

The UK Framework for Rare Diseases, published on 09 January, outlines the principles behind how people with a rare conditions will be diagnosed, treated and cared for in years to come. It provides the backdrop for how services need to improve for rare disease patients and their families/carers. Unusually for health, the Framework applies across all […]
May 2, 2019

New NICE neurological conditions guideline: a missed opportunity

The National Institute for Health and Care Excellence (NICE) has published a new guideline on suspected neurological conditions: recognition and referral. The Neurological Alliance is disappointed with the result. The guideline is intended to help non-specialist healthcare professionals, such as GPs, working in primary care to identify people who should be referred on for specialist investigation […]