Blog
Coproduction week: working together to back the 1 in 6
Rhys Holmes, who has the neurological condition superficial siderosis, joined The Neurological Alliance’s coproduction group to help develop the #BackThe1in6 campaign and help make the views and experiences of people with neurological conditions central to everything we do. For Coproduction Week (4 – 9 July 2022) Rhys tells us what being part of the group […]
NHS England and NHS Improvement publish roadmap for delegation of specialised services
NHS England and NHS Improvement (NHSE/I) have set out their plans to delegate responsibility for a range of services to an ‘Integrated Care System’ (ICS) level. This means that many services that are currently planned and commissioned at a national level (i.e. specialised) will now be planned and commissioned at a regional level. The ‘Roadmap […]
NHS England and NHS Improvement to appoint new National Clinical Directors for neuroscience
NHS England and NHS Improvement (NHSE/I) have confirmed they will appoint new National Clinical Directors (NCDs) for neurology, and neurosurgery and spinal surgery. A long time coming The roles are an important step in tackling the significant unwarranted variation in treatment, care and support for the 1 in 6 living with a neurological condition in […]
Improving mental health: join us in responding to the Government’s call for evidence
We welcome the Government’s call for evidence to develop a 10 year plan to improve mental health for everyone across the UK. Help make sure the neurological community is represented and join us in submitting a response. We know that living with a neurological condition, or caring for someone who does, can affect every part […]
Providing insight, working together: driving the neurology agenda forward in 2022
David Martin, The Neurological Alliance’s Chair of Trustees and CEO of MS Trust, writes: I recently met Sally. She is living in pain. Sally is struggling to walk and struggling to work. Her appointment to see a neurologist is months away. Sally is one of the 176,000 people with existing or suspected neurological conditions whose […]
England Rare Conditions Action Plan falls short on mental health
The Department of Health and Social Care have published the first Rare Diseases Action Plan for England, coinciding with Rare Disease Day on Monday 28 February 2022. The plan sets out the Government’s plans to improve the speed of diagnosis, access to genetic testing and how they assess access to medicines for rare conditions. The […]